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Coni Adams' Fundraiser:

The Mastocytosis Center at Brigham and Women's Hospital

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Coni Adams

THE STORY:

When I gave birth to Jonny boy on 9/16/11, he was immediately brought into the NICU for most of the day. He came back to my room around 8pm so I could finally feed him. I noticed that he had, red bumps on his face and trunk and thought nothing of it. 3 years later, I now know, his body was reacting. When Jonathan was about 4 months old, my husband & I took him to consult with Dermotology, about a brown/pinkish spot on his stomach. I was petrified thinking the worst. We saw the Dermotologist, and found out Jonathan has a rare skin disease called Urticaria Pigmentosa. We were sent home with a piece of paper that explained everything we had to avoid. Now at 3 years old, he has just over 100 spots on his body and many allergies. Although he is a happy boy, it has been a challenge and I believe we have yet to deal with, the toughest part of this disease. I am so very grateful to have such amazing Dr.'s in Boston and would love to help them help Jonny boy and everyone else dealing with Mastocytosis.

DONATE

To This Fundraiser

$1,350

MONEY RAISED
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  • Jill Verrochi

    $50

  • Daddy

    $500

  • Anonymous

    $100

  • Stephen Marcus

    $500

  • Uncle Jimmy & Aunt Tina

    $100

  • The Thompson's

    $100

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Fundraise for this Campaign

The Team: $1,350 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jonathan Adams

Amount Raised

$550

Fundraiser Title

Stephen Marcus

Amount Raised

$500

Fundraiser Title

Coni Adams

Amount Raised

$300

Donor Comments

The Thompson's

The Thompson's

DONATION: $100

2 years ago

Uncle Jimmy & Aunt Tina

Uncle Jimmy & Aunt Tina

DONATION: $100

2 years ago

Stephen Marcus

Stephen Marcus

DONATION: $500

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

2 years ago

Daddy

Daddy

DONATION: $500

2 years ago

Jill Verrochi

Jill Verrochi

DONATION: $50

I love you so much! You're perfect! xoxo 2 years ago