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Stephen Marcus' Fundraiser:

The Mastocytosis Center at Brigham and Women's Hospital

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BENEFITING: Brigham and Women's Hospital

ORGANIZER: Coni

Stephen Marcus

THE STORY:

Coni Adams wrote -

When I gave birth to Jonny boy on 9/16/11, he was immediately brought into the NICU for most of the day. He came back to my room around 8pm so I could finally feed him. I noticed that he had, red bumps on his face and trunk and thought nothing of it. 3 years later, I now know, his body was reacting. When Jonathan was about 4 months old, my husband & I took him to consult with Dermotology, about a brown/pinkish spot on his stomach. I was petrified thinking the worst. We saw the Dermotologist, and found out Jonathan has a rare skin disease called Urticaria Pigmentosa. We were sent home with a piece of paper that explained everything we had to avoid. Now at 3 years old, he has just over 100 spots on his body and many allergies. Although he is a happy boy, it has been a challenge and I believe we have yet to deal with, the toughest part of this disease. I am so very grateful to have such amazing Dr.'s in Boston and would love to help them help Jonny boy and everyone else dealing with Mastocytosis.

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To This Fundraiser

$500

MONEY RAISED
  • Stephen Marcus

    $500

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Fundraise for this Campaign

The Team: $1,350 TOTAL RAISED SO FAR

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Fundraiser Title

Jonathan Adams

Amount Raised

$550

Fundraiser Title

Stephen Marcus

Amount Raised

$500

Fundraiser Title

Coni Adams

Amount Raised

$300

Donor Comments

Stephen Marcus

Stephen Marcus

DONATION: $500

2 years ago