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jonny lee miller's Fundraiser:

Jonny Lee Miller - Foundation to cure Sanfilippo

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jonny lee miller's Photo
jonny lee miller

THE STORY:

We desperately need to find a cure for children suffering from Sanfilippo Syndrome.  This ultra rare disease leads children to suffer brain damage, bone deformities, organ failure, and eventually death, often by their teenage years.   People’s kindness is the only way to fund the search for a cure since Sanfilippo Syndrome is not being paid attention to by big pharmaceutical companies.   

On behalf of JJB, In 2013 I ran my first 50-mile Ultra Marathon in Bear Mountain followed by another 50 Miler in Vermont and then the NYC Marathon.  

This year I ran my first 100 Miler in Maryland, on July 5th I will run 50 miles through the streets of NYC and I will continue to run for JJB until we reach our goal of a cure while bringing awareness to this most urgent fight to help save kids like Jonah.

If everyone gives something today, then the research and studies to find a cure can be accomplished.  Do something amazing and help us help these kids!!  Donations are tax-deductible. Thank you!!!!!!!!!!

Jonny Lee Miller

DONATE

To This Fundraiser

$208,656

MONEY RAISED
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  • monica

    $50

  • Anita S.

    $100

  • Daria-Maret Geller

    $25

  • Erin Shaheen

    $10

  • Anonymous

     

  • Terri

    $10

  • janice vakili

    $25

  • Pirela family

    $25

  • Sue Lent

     

  • Austin

    $50

  • Corinne T.

    $50

  • Thomas Jiang

    $100

  • Daria-Maret Geller

    $10

  • Sandra from Bilbao.

    $100

  • Alicia

    $25

  • Mitra Harding

    $75

  • Anonymous

    $25

  • LL

    $1,000

  • jcporter1

    $10

  • Connie "grandma" Offenbacker

    $50

  • Sara

    $50

  • Nairobi Wonders

    $25

  • Daria-Maret Geller

    $35

  • Kathy

    $25

  • Anonymous

    $200

  • James C

    $100

  • Daria-Maret Geller

    $70

  • Alma Valli

    $50

  • Julie C. Hammonds

    $25

  • Barbara Cleaves Frey

     

  • Anonymous

    $20

  • John and Brenda Winkler

    $200

  • Anonymous

     

  • Marie G.

    $10

  • Laurie C.

     

  • Daria-Maret Geller

    $105

  • Anonymous

     

  • Kim Lowe

     

  • Daria-Maret Geller

    $50

  • Boehm family

    $20

  • Daria-Maret Geller

    $25

  • Sheldon Oberfeld

     

  • Daria-Maret Geller

    $34

  • Barbara Cleaves Frey

     

  • Laurie C.

     

  • Susan

    $200

  • Liz carey

     

  • Daria-Maret Geller

    $40

  • Gay Watmore

    $50

  • Barbara Cleaves Frey

     

  • Shahpour Emile Harding

    $100

  • Vijay Sarthy

    $50

  • Georgette Timmerman

    $75

  • Daria-Maret Geller

    $10

  • Barbara Cleaves Frey

     

  • Cathleen Conte

    $20

  • Joan Kwasiborsi

     

  • Anonymous

    $10

  • Anonymous

     

  • Pam (@imatoysruskid)

     

  • Erik Colvin

    $10

  • Chloe Farrar

    $60

  • Daria-Maret Geller

    $20

  • Kevin Harrington

    $25

  • Abraham Broadfoot

    $250

  • Brenda Gagnon

    $25

  • Barbara Cleaves Frey

     

  • Laurie Caine

     

  • Georgette Timmerman

    $250

  • Anonymous

     

  • pete karolczak

    $1,000

  • Eileen Carey

    $30

  • Anonymous

     

  • Daria-Maret Geller

    $10

  • Gay Watmore

    $50

  • Pam Holland

    $10

  • Barbara Cleaves Frey

    $100

  • Georgette Timmerman

    $250

  • Laurie Caine

     

  • Daria-Maret Geller

    $50

  • Barbara Cleaves Frey

    $100

  • bella khidhir

     

  • Laurie Caine

     

  • Daria-Maret Geller

    $40

  • Susan JLM Fan

    $300

  • Daria-Maret Geller

    $125

  • Daria-Maret Geller

    $10

  • Anonymous

    $10

  • Anonymous

     

  • Barbara Cleaves Frey

     

  • Kate Joseph

    $100

  • Laurie Caine

     

  • Georgette Timmerman

    $100

  • Anonymous

    $25

  • Julie H.

    $10

  • M T

    $25

  • Anonymous

     

  • Daria-Maret Geller

    $25

  • Eileen Carey

    $40

  • Daria-Maret Geller

    $50

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42% Raised of $500,000 Goal

Donor Comments

Daria-Maret Geller

Daria-Maret Geller

DONATION: $50

Kunstspur Wennigsen 11.7.17 2 weeks ago

Eileen Carey

Eileen Carey

DONATION: $40

In honor of my favorite marathoner, JLM, on Boston Marathon Day 2017 2 months ago

Daria-Maret Geller

Daria-Maret Geller

DONATION: $25

Rare Disease Day Stand at Kino am Raschplatz 4 months ago

Anonymous

ANONYMOUS

:) 5 months ago

M T

M T

DONATION: $25

6 months ago

Julie H.

Julie H.

DONATION: $10

For Jonah and all kids like him, find a cure! 7 months ago

Anonymous

ANONYMOUS

DONATION: $25

7 months ago

Georgette Timmerman

Georgette Timmerman

DONATION: $100

In honor of Jonny's birthday & in memory of all the children taken from us 7 months ago

Laurie Caine

Laurie Caine

Happy Birthday Jonny Lee Miller! Thank you for all you do for Jonah and all the children! 7 months ago

Kate Joseph

Kate Joseph

DONATION: $100

7 months ago