ORGANIZER: jonny lee miller
jonny lee miller wrote -
We desperately need to find a cure for children suffering from Sanfilippo Syndrome. This ultra rare disease leads children to suffer brain damage, bone deformities and organ failure, and eventually death, often by their teenage years. People’s kindness is the only way to fund the search for a cure since Sanfilippo is not being paid attention to by big pharmaceutical companies. On behalf of Jonah’s Just Begun, I am running my first 50-mile ultramarathon at Bear Mountain. I hope to bring awareness to this most urgent fight to help save kids like Jonah. If everyone gives something today, then the research and studies can be done. For more info go to www.jonahsjustbegun.org. Do something amazing and help us help these kids!! Donations are tax-deductible. Thank you!!!!!!!!!!