BENEFITING: Joslin Diabetes Center
ORGANIZER: Joslin Diabetes Center
Many of you know my son Henry was diagnosed with type 1 diabetes (T1D) nearly 6 years ago when he was two years old. Ever since that day in November Joslin Diabetes Center has been at the center of our lives, guiding us in the management of his diabetes on a continual basis. This is the third marathon we have run for Joslin and my 11th overall.
This year has been a particularly tough year for Henry as his body is changing and diabetes is becoming more ever present in his life. In January Henry suffered a diabetic seizure from low blood sugar. I was in Las Vegas traveling for work and Kelly was home with Henry (thank goodness!) and our two other boys. I took the next available flight home. This is the scenario anyone with T1D and caretakers all fear and work to avoid at all costs. It was absolutely terrifying for Kelly and his brothers to see Henry in that situation and extremely difficult for me to be so far away.
Ever since that day we have been working closely with Joslin's pediatric team of doctors, nurses and specialists to try to get Henry's daily management back to where it was over the previous years. We basically had to hit reset and start from a new base and adjust calculations daily and now weekly to get his overall numbers back under stricter control. It is still a work in process as his overall blood sugar for the year (A1C ) is at his highest levels since diagnosis. All while Henry is trying to live a normal life of an 8 year old. He loves basketball, playing baseball and always playing with friends. With T1D you can do all of that, but Kelly or myself are always in the background making sure he doesn't go low and always administering insulin through his pump. Every day at school nurses are checking his finger to make sure he isn't low and that he has his insulin during snacks and lunch. Life with T1D is not convenient for anyone and the constant interruptions are getting more difficult for an 8 year old boy who just wants to play, have fun and not be interrupted all the time. In the background of all of this is Joslin helping Kelly and I make adjustments so interruptions can be fewer, so Henry can better understand how to live his life with T1D and ultimately working with him to get access to the latest and greatest diabetes management tools to improve his quality of life. All while conducting research to find a cure. Without Joslin, Henry and so many others with this terrible disease would be much worse off. We are confident we will see the day when there is a cure and Joslin will be central in that process. That is why I am running again to support Joslin Diabetes Center!
Please help by donating any amount that is comfortable for you or by spreading the word to others. All of your support is greatly appreciated!
-- Joslin Diabetes Center wrote --
Joslin Diabetes Center, based in Boston, Massachusetts, undertakes diabetes research, clinical care, education and health and wellness programs on a global scale. Joslin is dedicated to ensuring that people with diabetes live long, healthy lives and offers real progress in preventing and curing diabetes. Joslin is an independent, nonprofit institution affiliated with Harvard Medical School, and is recognized worldwide for driving innovative solutions in diabetes prevention, research, education, and care. Our mission is to prevent, treat and cure diabetes. Our vision is a world free of diabetes and its complications.
The funds raised by Team Joslin support the High Hopes Fund. This fund helps Joslin prevent, treat and cure diabetes through cutting-edge research, comprehensive patient care and pioneering education programs.