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Julia Santella

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Tom
Tom SAYS:
Thank you all so much for yo…
Thank you all so much for your donations, support and kind words of encouragement over the past months. Our BALS Marathon Team raised $104,324 from 191 donations. You are all incredibly generous and I hope you feel great about that. It feels good to do good!

The L.A. Marathon went well for the whole team. Mary completed her first 26.2, so she was guaranteed a PR. Maureen is a veteran marathoner and kept her focus on the pizza and beer at the finish. Tom stayed with our wheelchair marathoner, Chris, for the whole distance. Mike was having a tough day with early debilitating shin splints, but when he caught up to the wheelchair at mile 20 he was able to enjoy the last six miles running with the chair, having put his own pain in perspective. Pushing the chair is a very uplifting experience and the runners and spectators really respond to the effort. There is a tradition at the end that the ALS marathoner gets out of the chair and walks across the finish line with his family. It’s an emotional experience and worth taking a look at the pictures here: https://www.facebook.com/Beat-ALS-Marathon-Team-686930354690923/

The ALS Association’s Chief Scientist, Lucie Bruijn, Ph.D. MBA, sent a nice update explaining how our donations are funding research right here in the West through the Neuro Collaborative, which combines the efforts of three prominent laboratories at Cedars-Sinai, UCSD and the Gladstone Institutes (UCSF). These efforts are currently leading to actual clinical trials that show promise and also are developing technologies that will facilitate their transition from bench science to effective therapies. There is hope and we are making progress.

I’d like to express one last thank you for sticking with us these four years. I know donor fatigue sets in and that’s especially true after Michael’s passing, which took away that personal connection and urgency. But I know exactly what Michael would be doing if he were here and one of us wasn’t. He would be putting his head down and doing the work and trying to help other families dealing with the worst news they will ever hear. He would want to offer them some comfort and hope. And that is why we will be back next year and we hope you will be right here with us.
2 years ago
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Tom
Tom SAYS:
Julia, Thank you so much fo…
Julia,

Thank you so much for your donation and kind words. I really appreciate it and I know Julia does as well. Hope all is well with you.

Take care and thank you!

Tom
2 years ago
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Tom
Tom SAYS:
Friends, On behalf of all s…
Friends,

On behalf of all six BALS Marathon Team members, I want to thank you for your generosity and support during this endeavor. Four hundred of you donated $165,590 to fund research to find a treatment for ALS. Like Lou Gehrig, we are all very lucky to know such wonderful people and call them friends.

All of us are rallying around Michael Motherway who adds, "Thank you all for being so generous for ALS research. It's only a matter of time until this disease is cured. My special thanks to the six team BALS runners who braved the heat in this fundraising effort. God bless you all."

Oh, yeah, we did run the marathon as well. It was a good day out. It was a celebration of months of training and a celebration of life by pushing ALS marathoner Mark Hume over the 26.2 mile course in a wheelchair. We raised a little awareness as well as some money for the cause.

Again, thank you all so much. We will all be back again next year (including Paul even if he hasn't exactly agreed yet) and who knows, maybe some of you will be inspired to join us! February 14, 2016.

Beat ALS Marathon Team

PS: Some photos of the day are at https://www.facebook.com/pages/Beat-ALS-Marathon-Team/686930354690923
3 years ago
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Tom
Tom SAYS:
Well, our 2014 Beat ALS Mara…
Well, our 2014 Beat ALS Marathon is now over and we all completed the 26.2 miles in the heat so we don’t have to give any money back! Paul, Ryan and I want to thank each and every one of you. All 318 of you and your families. Together we raised $126,467, which is a testament to your kindness, your generosity and to your love for Michael, Julia and their family. It is reciprocated as you will read in Michael’s note below. If you would like to check out some photos of the day, please visit the BALS facebook page: https://www.facebook.com/pages/Beat-ALS-Marathon-Team/686930354690923 Thank you and we will see you at the finish line in 2015!

Tom, Ryan & Paul

Dear friends and family, I am humbled by the generosity of everyone contributing to this effort. These are resources well spent as ALS research is hitting a critical point where this disease will become a manageable condition in the relatively near future rather than a terminal diagnosis. We are privileged to have become acquainted with some of the best researchers in the field and all indications are that like MS over the past 15 years, ALS treatment is poised to make great advances. However, drug development is a tedious and expensive process and we are all thankful for your joining the fight.

A particular thanks to the generals leading team BALS into battle: Tom, Ryan and Paul. I am blessed to have such talented and dedicated brothers and friends and for that I am grateful. Julia, Billy, Cecilia and I are touched by the grace bestowed on us through your generous donation and prayers. Know that we offer up our prayers for you too. Thank you.

Michael

And from the ALSA-OC:

Wow, what more could be said about the success of our 2014 LA Marathon team. On behalf of the Board of Directors of the ALS Association Orange County Chapter, THANK YOU for helping us achieve what too many believe unachievable. Together we celebrated Jodi and the hard work of her fellow athletes (BALS): Paul, Tom, Ryan and Michael. The FIVE of them in coordination with all of you completed a grueling 26.2 miles in a hot and difficult running environment. Because our Board underwrites the costs of this event, 100% of the money raised goes directly to fund research for a cure.

Jared Mullins, Executive Director & Mark Hershey, President of the Board of Directors
4 years ago
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Julia Santella
Sarasota, FL United States
CROWDRISING SINCE: Feb 12, 2014
Stuff About Me:
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Julia
Santella

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16,275

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Julia Santella's Fundraisers

Beat ALS Marathon Team

Beat ALS Marathon Team

Amount Raised:

$275