No one desrves to battle Amyotrophic lateral sclerosis (ALS). No one. But my Uncle Ron really didn't.
Uncle Ron was a man of strong character. He was a family man and a man of faith. Uncle Ron made his community a better place every single day. And he made my world a better place. My Uncle Ron taught me what "deer spotting" is. He is the original inventor of blone jokes (I am pretty sure). And he was the best boat captain on the whole planet.
Uncle Ron was diagnosed with ALS on Boston Marathon weekend in April of 2018. I was, ironically, leaving an event in honor of last year's ALS Cellucci marathon team when I got the news. He passed away on September 17, 2018. With every step I take during training in the marathon I will be running for those who cannot. I will #RunforUncleRon.
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. I belive that the research being done currently at UMass Medical Shcool by Dr. Bob Brown and his team is our best hope to finding a cure in my lifetime. The work they are doing is unbelieveable and I want to help support their efforts through fundraising. Please help us find a cure!
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