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Julie McCoy

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Will, Amy and Liam
Will, Amy and… SAYS:
Your support and thoughtfuln…
Your support and thoughtfulness since we received Liam’s diagnosis has been incredible and means the world to us. It is truly humbling to have so many supporters out there willing to step in and help us. The donations from everyone have been unbelievable and we don’t know how to thank you enough. We have opened an account in Liam’s name and all of the donations have gone towards and will continue to go towards expenses and things Liam will need now and in the future.

Now that the holidays have passed and things have slowed down a little, our family wanted to reach out and share an update on how things have been going.

Last week we returned home from Liam’s surgery where he had his temporary feeding tube removed and replaced with a g-tube. He also received a Nissen Fundoplication, which is a surgical procedure in which the top of the stomach is wrapped around itself to prevent reflux. Liam did awesome and his recovery is going great. As a family, we are trying to get used to his new feeding through the g-tube, but as always Liam is a very happy boy.

Next week we will be traveling to Chicago to have his 4th dosing for the trial. We have high hopes that he is receiving the drug and we continue to pray, stay positive, and watch for possible signs of improvement. At this time, Liam is still unable to hold his head up, has no movement in his legs, and very little movement in his arms.

Liam loves snuggle time with Mommy and Daddy (and gets lots of it throughout the day). He’s a happy little boy who is always smiling, cooing, and giggling. He enjoys reading with Daddy and singing songs with Mommy.

Liam would like to send you a thank you note. If you could reply with your address we would greatly appreciate it.

With love,

Will, Amy, and Liam
2 years ago
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Julie McCoy
0, 0 United States
CROWDRISING SINCE: Dec 17, 2015
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