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Justin West's Fundraiser:

Justin Runs Disney 4 Liv

Justin's Photo
Justin's Photo
Justin's Photo

BENEFITING: LIV LIFE FOUNDATION

EVENT DATE: Jan 12, 2013

Justin West

THE STORY:

This year I decided that I was going to lose weight and get healthier. One of the things that I've decided to do is to run a half marathon at Disney World with my sisters. As this is a selfish endeavor to benefit myself I've decided to try and do something positive. Through some of my longer training runs I draw on inspiration to keep going by thinking about 2 very special little ladies and thinking about the challenges they have and will face. Since I cannot find any site that allows you to split donations between charities I've had to start 2 pages. Any and all donations are greatly appreciated. If you decide to donate it would be awesome if you could split whatever you are able to give between the 2 charities.

My cousin's daughter Livia is a beautiful little girl who has been diagnosed with MPS or Sanfilippo Syndrome. This is a genetic error of metabolism for which there is no cure or treatment.

Children who have Sanfilippo Syndrome may experience some of the following

Hearing loss
Speech delay/loss
Insistent need to chew
GI upset causing diarrhea
Seizures
Swallowing difficulties
Feeding tubes
Loss of mobility
Sleep issues
Difficult behavior
Dementia
Upper respiratory infections
loss of life. Life expectancy is 10-20 years


You can learn more by visiting www.livlife.us

 

Please also visit my other fundraiser page at www.crowdrise.com/JustinRunsDisney4May

DONATE

To This Fundraiser

$760

MONEY RAISED
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  • Leslie/Harmony Burton

     

  • Bryan Aldrin

    $100

  • Debi Augle

    $50

  • Missy & Ray

    $25

  • T. Boyd

    $100

  • Family donations

    $160

  • Liz Boehm

    $20

  • Christina Hynes

    $50

  • JERRY FAMILY

    $20

  • Debbie Bafia

    $50

  • Ken Benich

    $10

  • The Dance Connection

    $50

  • Rebecca West

    $100

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76% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $760 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Justin West

Amount Raised

$760

 

76% Raised of $1,000 Goal

Fundraiser Title

Lauren West

Amount Raised

$0

Donor Comments

Rebecca West

Rebecca West

DONATION: $100

4 years ago

The Dance Connection

The Dance Connection

DONATION: $50

4 years ago

Ken Benich

Ken Benich

DONATION: $10

4 years ago

Debbie Bafia

Debbie Bafia

DONATION: $50

4 years ago

JERRY FAMILY

JERRY FAMILY

DONATION: $20

4 years ago

Christina Hynes

Christina Hynes

DONATION: $50

4 years ago

Liz Boehm

Liz Boehm

DONATION: $20

4 years ago

Family donations

Family donations

DONATION: $160

These are donations handed to me over Christmas by family. A big thanks to Granny F, Aunt Cindy and Uncle George, Aunt Amy and Uncle David, and Jacob and Kelly! 4 years ago

T. Boyd

T. Boyd

DONATION: $100

5 years ago

Missy & Ray

Missy & Ray

DONATION: $25

5 years ago