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Natalie Griffin's Fundraiser:

Kailee's Guardians

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Natalie Griffin via Crowdrise
April 15, 2011

running for Kailee in the Northface Challenge with 4 other Coast Guard Families. Our team is Kailee's Guardians  See more
Natalie Griffin

THE STORY:

We are a team of ten Coast Guard family runners who have joined together to help one of our fellow Coast Guard family's Daughter, Kailee. Kailee has been diagnosed with Mitochondrial Disease (specifically MELAS). May 6 and 7 th, we are running the North Face Challenge to help raise money for this cause.
Kailee seems like a normal happy, beautiful eight year old girl. However, She has endured many seizures and her disease is progressively taking away her ability to move and walk. There is no treatment that is approved in the US and there is no cure, only research and hope. The muscles will continue to weaken, until they are all affected and the brain.
The family has had to endure the pain of this news and the many challenges of providing Kailee optimal care, something any caring parent would want to be able to offer their child. Unfortunately, Tricare does not cover it all. Her needs include a ramp, a therapy swing, a weighted blanket, nursing care and other basic needs would help things be easier on this wonderful caring family.

The Team: $0 TOTAL RAISED SO FAR

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