Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 17,000 people. As it is an X-linked genetic disease, it most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain’s neurons — the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers.
The Aidan Jack Seeger Foundation advocates for Newborn Screening to be mandatory in ALL states as well as provides family, physician and legislative support. Check out aidanhasaposse.org to learn more!