Racing with Lungs and with Heart
March 04, 2017
BENEFITING: TEAM PHENOMENAL HOPE INC
EVENT DATE: Feb 25, 2017
My son was diagnosed with PH when he was one year old. When a child has PH, wellness is a struggle for the whole family. Our son is now four, and his PH is managed by triple therapy. He lives a full and fantastic life. We are so grateful for love and support from our friends and family, our medical team and the wider PH community. We have become friends with three families in Minnesota whose children have PH and we realize the value of knowing people who understand our experiences. I am skiing not only for my son, but for Evelyn, Evan and Evie and all children who battle PH.
Join me as I prepare for the Birkebeiner 50K ski race in February 2017.