26.2 done and over
November 08, 2016
When our one-year-old son was diagnosed with Type 1 diabetes in 2012, we knew we were lucky in an unlucky way. We caught his diabetes before he was very sick.
Many aren't so lucky.
As well-known as Type 1 diabetes is, it still gets missed or misdiagnosed to fatal consequences. Eleven-year-old Angela Elizabeth Robinson of Murfreesboro, Tenn. died from misdiagnosis. This is not acceptable.
Type 1 is a manageable condition with effective treatments. Its symptoms are thirst, urination, lethary, and a sweet smell on the breath. A blood sugar test is simple.
Enzo is still lucky. He has the best diabetes technology, great insurance, wonderful doctors and parents devoted to his health. He is a thriving six-year-old interested in Star Wars, swimming, Greek myths and ... Star Wars.
While managable (a word I loathe), Type 1 is not easy. It takes constant vigilance -- 24 hours a day, seven days a week, 365 days a year. It has short-term and long-term consequences. For the four years , there isn't a night that I don't wake up to check on him. There isn't a day when his blood sugars have been perfectly normal.
I am running the TCS New York City Marathon in 2016 to raise awareness about Type 1 diabetes and raise funds for the JDRF which supports the development of new technologies, and researches cures so there can be a world without Type 1, so we never have to see "died from complications of Type 1 diabetes" in an obituary again.