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Donna Winter-Fee's Fundraiser:

Kate’s Butterfly Mitzvah Project

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BENEFITING: EB Research Partnership

ORGANIZER: Kate

Donna Winter-Fee

THE STORY:

Kate Hanson wrote -

mitzvah (Hebrew)
1. A commandment or precept, especially one found in the Bible
2. A good deed

In June of 2012 I will be celebrating my Bat Mitzvah. This is an exciting milestone in my life, and one that I have worked towards for many years. I am excited to celebrate my Bat Mitzvah with my friends and family. But I also know that helping others is the true Mitzvah and is really what is most important.

For my Mitzvah Project, I have decided to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization that supports Epidermolysis Bullosa ("EB"), also known as “Butterfly Disease”. EB is a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.

I have selected this charity because the lead singer in the band who is playing at my Bat Mitzvah has a young son with EB. The boys’ name is John Hudson Dilgen and he is a great kid who suffers unimaginable pain every day. Visit www.johnhudsondilgen.com to learn more.

Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body. Not only does EB affect external skin, but internal organs as well.

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed. Children like John Hudson have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his shortened life.

There is tremendously encouraging work underway, and a cure for EB is within reach. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB. This year alone, the Jackson Gabriel Silver Foundation has awarded $175,000 in research grants.

Please consider making a donation to help me reach my fundraising goal of $2,000. Every dollar brings us a step closer to finding a cure. Spread the word about EB, because knowledge is power!

Thank you so much,
Kate

The Team: $2,910 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Kate Hanson

Amount Raised

$2,910

 

146% Raised of $2,000 Goal

Fundraiser Title

Donna Winter-Fee

Amount Raised

$0

Fundraiser Title

Barbara Lazaroff

Amount Raised

$0

Fundraiser Title

DR. JACK SHERMAN

Amount Raised

$0

Fundraiser Title

Kate Hanson

Amount Raised

$0

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