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Kate Hanson's Fundraiser:

Kate’s Butterfly Mitzvah Project

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Kate's Photo
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Kate Hanson via Crowdrise
June 12, 2012

My Bat Mitzvah was great! Thanks to everybody for their generosity! Let's keep going!  See more

BENEFITING: EB Research Partnership

ORGANIZER: Kate

Kate Hanson

THE STORY:

mitzvah (Hebrew)
1. A commandment or precept, especially one found in the Bible
2. A good deed

In June of 2012 I celebrated my Bat Mitzvah. This is an exciting milestone in my life, and one that I have worked towards for many years. I am excited to have celebrated my Bat Mitzvah with my friends and family. But I also know that helping others is the true Mitzvah and is really what is most important.

For my Mitzvah Project, I decided to support the Jackson Gabriel Silver Foundation (JGSF), a nonprofit organization that funds research for Epidermolysis Bullosa ("EB"), also known as “Butterfly Disease”. EB is a devastating, painful, disfiguring and currently incurable blistering disorder that affects children from birth. The foundation funds scientific research with the goal of curing and treating this devastating disease.

I selected this charity because the lead singer in the band who played at my Bat Mitzvah has a young son with EB. The boys’ name is John Hudson Dilgen and he is a great kid who suffers unimaginable pain every day. Visit www.johnhudsondilgen.com to learn more.

Practically speaking, a child who suffers from EB lacks a critical protein that binds his or her layers of skin together. Imagine your skin being as fragile as a butterfly's wings. Imagine every movement you make causing your skin to shear off your body. Not only does EB affect external skin, but internal organs as well.

Curing a rare disease is always a race against the clock. But curing EB is a race against a clock moving at warp speed. Children like John Hudson have a 60% risk of dying by age 15, and nearly a 100% chance of developing an aggressive, painful and fatal form of skin cancer over the course of his shortened life.

There is tremendously encouraging work underway, and a cure for EB is within reach. The Jackson Gabriel Silver Foundation has already funded key research projects and is excited to collaborate with the brilliant scientists working on a cure for EB. This year alone, the Jackson Gabriel Silver Foundation has awarded $175,000 in research grants.

Please consider making a donation to help me continue my fundraising.  Thanks to all who have donated, I have surpassed my fundraising goal of $2,000. Every dollar brings us a step closer to finding a cure. Spread the word about EB, because knowledge is power!

Thank you so much,
Kate

DONATE

To This Fundraiser

$2,910

MONEY RAISED
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  • Hanson Family

    $100

  • Kate Hanson

    $36

  • The Everett Family

    $100

  • Danielle Wadler & Family

    $36

  • The Goetz Family

    $54

  • Robyn and Larry

    $50

  • Ruth Mavilia

    $100

  • Stephen Rabin

    $20

  • Daniel Hanson

    $36

  • Chris, Claudia, Zach and Kyle Bellis

    $100

  • Amy, Desmond, Rachel & Adrian Flynn

    $200

  • Judy and Michael

    $54

  • The McCourt Family

    $50

  • Kerry, Andy, Kalli, Laura and Adam

    $100

  • Brian D

    $18

  • Anonymous

    $100

  • Anonymous

    $500

  • Barbara Lazaroff

    $200

  • Meda Turetsky & Ted Cohen

    $36

  • Anita Rochman, Lynn and Robert Gould

    $100

  • Jim, Lisanne, Gabe, Jaron and Eric Biolos

    $54

  • Simms Family

    $36

  • The Shokrian Family

    $36

  • kevin

    $36

  • The Weller Family

    $72

  • Merle and Jack Klam< Steff and Spencer Goodman and family

    $100

  • Rand, Brian and Daniel Kurtzer

    $50

  • Edith and Stanley Sheidlower

    $100

  • Jamie, Alex, Jackson and Michaela Silver

    $50

  • Gary Sherman

    $50

  • Jack and Leni Sherman

    $50

  • The Robinson Family (Annie, Roger, Abi and Jake)

    $100

  • The Russell Family (Judy, David and Erica)

    $36

  • Anonymous

    $150

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146% Raised of $2,000 Goal

Fundraise for this Campaign

The Team: $2,910 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Kate Hanson

Amount Raised

$2,910

 

146% Raised of $2,000 Goal

Fundraiser Title

Donna Winter-Fee

Amount Raised

$0

Fundraiser Title

Barbara Lazaroff

Amount Raised

$0

Fundraiser Title

DR. JACK SHERMAN

Amount Raised

$0

Fundraiser Title

Kate Hanson

Amount Raised

$0

Donor Comments

Anonymous

ANONYMOUS

DONATION: $150

6 years ago

The Russell Family (Judy, David and Erica)

The Russell Family (Judy, David and Erica)

DONATION: $36

6 years ago

The Robinson Family (Annie, Roger, Abi and Jake)

The Robinson Family (Annie, Roger, Abi and Jake)

DONATION: $100

6 years ago

Jack and Leni Sherman

Jack and Leni Sherman

DONATION: $50

6 years ago

Gary Sherman

Gary Sherman

DONATION: $50

6 years ago

Jamie, Alex, Jackson and Michaela Silver

Jamie, Alex, Jackson and Michaela Silver

DONATION: $50

Mazel tov on this very special event and thank you for making such a difference in the lives of individuals with EB. 6 years ago

Edith and Stanley Sheidlower

Edith and Stanley Sheidlower

DONATION: $100

6 years ago

Rand, Brian and Daniel Kurtzer

Rand, Brian and Daniel Kurtzer

DONATION: $50

6 years ago

Merle and Jack Klam< Steff and Spencer Goodman and family

Merle and Jack Klam< Steff and Spencer Goodman and family

DONATION: $100

You are a very special person. We are so very proud of you 6 years ago

The Weller Family

The Weller Family

DONATION: $72

6 years ago