Kathy Huey ALS Fund
Team Member: Cecelia Saigeon
Linda Smith wrote -
THIS IS MY SISTER, Kathy, with two of her grandchildren, during healthier times. There are three more grandchildren, and word on the street is that there’s a sixth in the planning stages. Unfortunately, Kathy won’t see them grow up. A few months ago we got the devastating news that she has ALS, Amyotrophic Lateral Sclerosis (“Lou Gehrig's Disease”). The recent Ice Bucket Challenges have brought huge awareness, so most people likely know that it is a very progressive disease, and the prognosis is dire. In October last year, she was going about life and functioning normally. Today, she is confined to a wheelchair, unable to even transfer into bed at night without assistance, and using a ventilator to help her breathe.
The expenses are enormous. Some medications are not covered by insurance. There are co-pays, trips to Emory University Hospital for doctor visits, a special van to transport her and her very specialized wheelchair, and tools that are necessary to assist her with day-to-day activities.
Kathy is very independent and would never ask for help from anyone; however, several of my family members and I want to ask for help on her behalf. I understand $110 million was donated to the ALS cause as a result of the Ice Bucket Challenge. That is very encouraging and will, hopefully, fund desperately needed additional research. However, in the meantime, thousands of people like my sister are struggling to manage day-to-day activities with this very progressive, vicious, destructive disease.
This fund has been set up to help Kathy (and her two young daughters who are caring for her) with continually increasing expenses. My hope is that you will find it in your heart to contribute, even a small amount. And if you want to couple that with an Ice Bucket Challenge for Kathy, that’s even better!
PLEASE SHARE ON YOUR FACEBOOK PAGE. Thank you.