Kawasaki Disease Ninja Dylan Olson's Fundraising Page
Organized by: Cecylia Olson
Our athletic 6 year old son Dylan Olson was diagnosed with Kawasaki Disease on July 1, 2015, in the middle of his Allstar baseball season. The diagnosis was almost missed. Time is critical in diagnosing and treating children, as the disease damages the coronary arteries and develops aneurysms in as little as 10 days of onset of fever. KD is the number one cause for acquired cardiac conditions in children. There is a treatment available, but there is so much that remains a mystery. Researchers at Kawasaki Disease Research Center UCSD at Rady Children's Hospital San Diego are the pioneers leading the way of research. Dylan is part of a clinical study, trying to figure out the cause of the disease. He will be part of their genetic study as well. The team is working on many research studies, as well as a clinical trial for a prototype diagnostic exam. As of now, the disease is diagnosed based on clinical signs and labs. You can check out their website which details all the clinical studies and the cost duration of each here https://www.pediatrics.ucsd.edu/research/Research_Centers/Kawasaki-Disease/Pages/default.aspx Many KD children that go undiagnosed never know they have heart aneurysms. These are the young athletes that have sudden heart attacks on the sports fields. Dr Tremoulet states she sees an unfortunate case like this at least once a month. When a child becomes ill with KD but goes undiagnosed, they will still "recover" from the illness. Little do their parents know that they just developed an aneurysm and are a cardiac ticking time bomb. Science and this team of MDs saved my son's life, and I owe it to them to help spread awareness and fundraise in my son Dylan's honor. Please donate to help Dr Jane Burns, Dr Adriana Tremoulet and their Kawasaki Disease Research Center colleagues find more answers to this mysterious, potentially deadly disease. 90% will go straight to the Research Center, and 10% will be used to sponsor our "Kawasaki Disease Awareness" Facebook page to keep the ads running. It costs $35 per week to run an ad, and I want every parent on Facebook to learn about Kawasaki Disease and its symptoms. Our goal is to make this disease a household name so no child goes undiagnosed. A sincere thank you for supporting our mission to save another life, as our son Dylan's life was just saved.