Kayla Levesque Cyr SLOS Syndrome
Organized by: Boyd Cyr
May the family stay stong / Que la famille reste forte
October 09, 2016
EVENT DATE Oct 16, 2016
We are raising money for Kayla Levesque Cyr who is an 8 week old baby that has been diagnosed with a rare syndrome called SLOS (Smith–Lemli–Opitz syndrome) meaning she does not produce enough cholesterol to grow normally. So far, doctors have discovered a hole in her heart, SVT, Hirschsprung (does not have bowel movement), cleft palate, high blood pressure, cataracts in one eye, club foot, extra toes and fingers and hip problems. All mentioned medical conditions are related to this rare syndrome. She is being fed by NG tube. She will have to be followed regularly at the IWK Hospital in Halifax and will need to undergo several surgeries. All donations will be greatly appreciated. Thank you in advance for your generosity!