Organized by: ashley jones
I would like to begin by saying thank you everything helps to include prayers. My son was born with special needs. He was born prematurely,has cerebral palsy,and a very rare genetic disorder called 1q21.1microduplication. He is only the 128th person in medical literature to be diagnosed with this. Vanderbilt children's hospital has been our home away from home. He is facing a very hard time ahead of him. Like any parent I wish I could do anything to improve his quality of life. Due to our extensive hospital stays I am unable to work. We lost everything. I am trying to raise money to make him more comfortable and try to start over with our home. He has to eat through a feeding tube, has multiple seizures a day,can not walk or talk. I would really appreciate any help available. Thank you for taking the time to read my testimony.