What is Let ‘Em Know?
It's a virtual run/walk to help raise awareness and funds for Fragile X from anywhere in the world! Ask anyone who’s participated: This is one of the easiest ways to raise awareness for Fragile X, so why not give it a shot?
It isn’t about how fast or slow you are. It’s about what you can do to raise awareness and “Let ’Em Know!”
What does “virtual run/walk” mean?
It means you can complete it anywhere and at anytime during the month of July, which is Fragile X Awareness Month. You can run or walk the 3.1 miles (5k) all at once or over the course of a week or the entire month.
I will be running on Monday July 21st. :)
So why am I doing it this year?
As many of you know, Todd and I are trying to start our family. We are anxious to get started but as I am a Fragile X carrier, we've hit quite a few hurdles along the way in the last 8 months. Thankfully, NFXI has provided wonderful information and resources for Todd and I in this journey. We're hoping that with the assistance of doctors, fertility drugs, and pre-genetic testing, we will pull Fragile X out of our bloodline.
The National Fragile X Institute has assisted me in my battles with autoimmune illness and has also studied Brent since he was young. We are incredibly grateful to them for all they have set up with regards to research and information.