As many of you know, Olivia almost lost her battle with a urea cycle disorder (Citrullinemia) within a few days of life. For seven years, she fought, she conquered, and she is now living a full and productive life. She has had some setbacks in the past and we continue to face some daily struggles but we want to focus on where we are going and not where we have been.
She has been chosen as 1 of 10 participants across the country in a study for the new drug, HPN-100. She is brave and although she does not like the monthly hospital visits and blood samples, she knows she is fortunate to be able to be a part of something that will hopefully be the next step closer to a cure for this horrible disorder.
Anyone who crosses paths with Olivia can see she is a strong willed. (okay, stubborn) little girl who knows what she wants in life. She appreciates the second chance she has been given and lives every moment to the fullest while bringing a smile to everyone's face in the process. It is difficult for many to understand her struggles because they can't "see" anything as being wrong with her on the outside.
The National Urea Cycle Disorder Foundation is a small group because of how rare the defects are. We rely heavily on fund raising efforts made by family members and their loved ones. Won't you help us get Olivia (and others) one step closer to a cure?
CR Impact Points
Click the VOTE button to give Kelli 100 CrowdRise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes. Come back and Vote every months. CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.
CR Impact Points
If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Kelli this month. Come back next month and vote again if you still love Kelli. Thanks to your vote, Kelli earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.