BENEFITING: The Leukemia & Lymphoma Society
EVENT DATE: Jun 29, 2017
Kendal and Kenedi are identical twin girls who share many things - the same parents, sister, features, and sadly, the same diagnosis...Acute Myeloid Leukemia. They were just 3 months old when they received this devastating diagnosis. Kendal and Kenedi immediately began a very intense regimen of chemotherapy and spent the next 5.5 months living in the hospital and fighting for their lives.
After 127 days of living in the hospital where they received 80 doses of chemo, 10 dressing changes, 106 lab draws, 27 different procedures (echo, EKGs, EEGs, etc.) 16 blood transfusions, 4 biopsies which included sedations (all times 2!), a new PICC line placement for Kenedi and an endless amount of antibiotics and other medications each, the twins were discharged in remission and deemed off treatment. But the fight is not over. After 17 months in remission, Kendal relapsed in February. She had endured a rough round one of chemo where she was not only fighting her leukemia but also an infection in her face and ears, as well as influenza. Kendal is now in the middle of round two of chemo for her relapse and we will be heading to bone marrow transplant when this round commences.
The fight is not over for Kenedi, either. She will continue to have follow-up lab appointments for the next 4 years. She will continue to have her heart monitored for the rest of her life to make sure that no damaged was caused by the chemo. We are currently working with an audiologist and an ENT to figure out if Kenedi’s hearing loss in her left ear is permanent or not – something that could be a side effect from the chemo she was given. We will continue to work with PT and OT to get her caught up on gross motor skills. And we will live in the constant state of being “cautiously optimistic” that the cancer does not return.
Please join us in supporting The Leukemia & Lymphoma Society (LLS) by making a donation to Beat AML. Over the years, support from people like you has been responsible for the blood cancer advancements that have doubled, tripled, and in some cases quadrupled the survival rate for some blood cancers.
But there is still work to be done. All donations are greatly appreciated and tax deductible. They'll not only support LLS research, but patient services, advocacy, public and professional education, and community services as well.
Please visit our page often and tell friends who would also like to donate! On behalf of blood cancer patients everywhere, thank you for your support!