Kenzis medical treatment
Organized by: Kim Paige
Some of you may know that my daughter has had some health issues that we have been struggling to get treated. Recently she was FINALLY given a diagnosis but it has made things even harder than before. She has been diagnosed with a "condition" (for lack of a better word) called Elhers Danlos. This condition affects EVERY organ system and is requiring us to go to the Dr/therapy 5 days a week, which means I can't work and LOTS of gas money ($150-200/week). Last week she had an additional therapy added but insurance will not cover the cost and she will loose her eye site without it. For just this one therapy it's $5000. We are behind on bills, the water will be cut off tomorrow if we don't come up with $300. We are looking at loosening our house as well. We think the best thing is for us to move close to her doctors but we have to have the money to do so. This illness has proven to be fatal for many, and due to it being EXTREMELY rare we have no idea what her prognosis is, but we do know it is severe enough that it qualifies for the make a wish foundation. We have applied for disability but we're denied (which is normal the first time and we are appealing), this and the fact we are looking at years of treatment has brought us to this point. I can't stop my daughter's pain and suffering, but hopefully I can keep my toddlers from having to suffer at the same time. If you can help it would be greatly appreciated.