BENEFITING: Citizens United for Research in Epilepsy (CURE)
Kristin Baird wrote -
Dylan was a healthy, active, sweet, fun and adorable little baby. When he was 16 months old he spiked a high fever resulting in a very prolonged seizure causing abnormal development on one side of his brain. After the seizure Dylan had to relearn all of the basic functions that he had already learned such as walking and talking. We spent about seven weeks in the hospital and as soon as we got home our sweet, loving, active, smart little guy returned. He started attending PT, OT and speech therapy weekly. He always went with a smile on his face and all the therapist commented on what a joy he was to work with as he never gave up.
About a year later (Nov. 2010) he started having simple partial seizures where he remained conscious and they usually lasted for a few seconds. These seizures aren't damaging to him, its more or less a disruption in his life. At first we saw a couple seizures a day. He was already on seizure medicine so we tried 3 more medicine's none of which worked. After a lot of discussion with the doctors we all decided surgery was the only option. Dylan had brain surgery in mid-Nov. 2011. He once again showed all the doctors that he's a fighter. They warned us that he might not walk for a couple of weeks to a couple of months. But not our Dylan he stood up and walked a few steps in the PICU two days post surgery and we were able to come home sooner than the doctors has originally anticipated.
Dylan continues to be a happy, energetic, sweet, smart and adorable little 3 year old. He still goes to therapy with a smile on his face and never gives up. We're amazed at his strength. We are about a month post surgery and Dylan is still having seizures, although drastically reduced in the number of seizures he's having daily. We're still optimistic that the seizures will stop.
It's frustrating to us that as advanced as medicine is today there is still so much we don't know about the brain and epilepsy. Our hope is that through research we can find a CURE for epilepsy.