Kicking cancers ARSE again for Mom
Organized by: Nicole Sirote
Nicole Sirote via Crowdrise
August 31, 2015
Cancer is one of the most dreaded diagnoses to receive. Being diagnosed once is devastating, being diagnosed twice is inhuman. Our mother, wife, sister, auntie, and Mimi to two loving and wonderful grandsons will be fighting this disease once again.
Mom's story: Little did I know after running the Boston Half Marathon to raise monies for Dana Farber Cancer Institute, that my Mom would be diagnosed with a re-occurrence of Cancer, a short 14 months since her last chemotherapy treatment.
Dana Farber Hospital saved her life with a desensitizing program that has been established for people with severe allergic reactions to the infusion drugs. Our mom had to be treated there after she had gone into anaphylactic shock from one of the infusion drugs on her fifth treatment.
Mom went to surgery on September 11th, 2013. The surgery was planned to be for 3-4 hours but due to some concerns of the surgeon, during the procedure, exploration of another area, turned this surgery into 8 hours.
We had no idea that the surgery would last this long and of course much anxiety and concern set in, When the doctor came out to speak with us, devastation set in, the worst word that could be uttered, became a reality...Cancer.
We were truly exhausted and could only ask why this was happening? There are no answers though, as many of you know, if something catastrophic has happened to you or a loved one.
Fast forward to 2015 and our Mom went in for her routine oncology visit. A CAT Scan was required and new lymph nodes were seen in the scan. This required further testing and a PET Scan was ordered. The result showed that the lymph nodes were active. This then, required a biopsy and our world fell apart for our mother and our family. The diagnoses was Cancer once again, just when my Mom felt like she was starting to feel like herself again.
Our mother could not cope with the diagnoses, she fell apart and did not want to go through anymore treatment. It was beyond horrible the first time, the chemotherapy treatment literally took all of her energy and she could barely walk. She would be up all night in pain from the treatments and the steroids would not allow her to sleep. It was one, if not the lowest times of my mother's life.
Trying to give her encouragement, we told her that we needed her and loved her. It is so difficult to say that mom did not want to live but we know it was coming from a place of pain and deep depression. She has two beautiful grandchildren who are the light of her life and we told her how they needed her.
In time she started to try to cope with the diagnoses. She felt she had no choice and was not ready to give up. She was determined now to fight this dreaded disease that was trying to rob her of her life.
Our mother is very blessed in her life, our Dad and her have been married for 40 years and in August, they will celebrate 41 years of marriage. Our Dad is devoted to our Mom , as she is to him and they are truly each other's best friend. She also has amazing friends who have been there for her with love and support.
Our Mom has worked for 24 years in the Hartford Public Schools, in Connecticut delivering dental treatment to the children , as a dental hygienist. She is about to lose her insurance. It will cost a great deal of money to cover the Cobra.
This is a matter of enormous heartache and anxiety for our family. Our mother is not being allowed to return to work by order from her oncologist, since she works with children. She will not have the antibodies to fight off infection once she starts the chemotherapy treatments in the near future. She is just recovering from her second surgery (July 2015) and trying to regain her strength both mentally and physically.
Our mother was out from her job for a year and was able to return and work this last school year, now she must repeat this horrific treatment one again.
Our parents will be traveling to and from Boston to Dana Farber Cancer Institute for treatment. This requires them to leave the night before and stay overnight because they must be in the hospital very early, even before anyone any staff are there to treat Mom. It is requested that they be there this early so the nurses can do what is required as soon as possible.
Therefore, as one can only imagine it is an expensive proposition between the gas, hotel,food and fees for parking. It is a tiring 2 hour drive home after treament and by the time they leave, it is night time. It is an exhausting and emotional trip. Dana Farber Cancer Institute is the only hospital in the country delivering this type of care. This care was discovered at Dana Farber by one of the physicians in our Mom's group of doctors.
It is most difficult to ask for help but this time life has handed us something beyond our ability to remedy on our own. As I (Nicole) have been active in fundraising for many years I felt it appropriate to do this with my family and having the support of my family.
We are not comfortable asking for help but my Mom once was told by a dear friend, if someone wants to help you, let them, it makes that person feel good to give to someone else. My Mom would never want people to do that but she has realized it is a way of expressing caring and love for others. She always would be there for others, but didn't want people to go out of their way to do for her.
No amount is too small and should you not be able to afford even a small donation, please share this with those who might be able to help in this fight.
A sincere and truly heartfelt thank you for any and all your kind words and generous donations. Please feel free to share this to raise more awareness to bringing about a cure for ovarian cancer, WE WILL NOT LET IT WIN!
Warmly, Nicole and Richard Sirote and Samantha Noone, (daughters and husband)