Kimberly Walther Powell
In 2004, my son Andrew was diagnosed with Fragile X Syndrome. It started me on a journey that I continue to travel each and every day. This journey has led me to unchartered territory in both the educational and medical world. Along the way I have been fortunate to have met and developed relationships with Fragile X professionals and specialists across the country. They have provided support, guidance and an array of knowledge that helps me make educated and informed decisions about what is in the best interest of my son. The most amazing fact about this journey though is the wonderful and caring families and faces of those with Fragile X that have become my extended family. They provide support, courage and love when you least expect it and do not know you need it. I was welcomed into a community of individuals that has the biggest heart and more determination than I have seen in most non-profit organizations. You see I am a non-profit professional by trade. With 20 years in the field, this Fragile X community is like no other I have experienced. I am proud to now have the opportunity to merge both my professional experience and passion to a cause that directly affects my son and my family. Please consider supporting me as I help to raise Fragile X Awareness this July with the "Let 'Em Know" 5K. You can support this effort by either making a donation to my page or starting your own fundraising page. Either way, please consider sharing this link with your network and help us "Let 'Em Know" about Fragile X.
If you wish to join us for the virtual 5k (date to be annouced later) you will also need to register in order to receive your own Let 'Em Know t-shirt and race bib.
If you would like to get more information on Fragile X please contact me or go to our website at www.fragilex.org
Thank you for your support!
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Kimberly Walther Powell's Fundraisers
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