Harrison and I have registered to run/walk the San Francisco Marathon 5k with strollers so our beautiful girls can participate too! We entered as a way to motivate ourselves to get in shape and set a personal goal. We plan to raise funds for the OI Foundation (OIF.org) as well which will make this experience even more rewarding. The funds we raise will go directly to the foundation to help with research and resources for families affected by OI and medical professionals who treat people with OI. Only 50,000 people in the U.S. have OI, if you are reading this you know three of us.
A few fun facts about OI - Kerry Ingram, an actress who most famously played Shireen on Game of Thrones has OI and so does Atticus Shafer who plays Brick on TV show The Middle. Last year Olympian McKenzie Coan won 3 gold medals in swimming and set a record in the 50 meter freestyle race, she also has OI. Have you ever seen cute videos made by Kid President aka Robby Novak, he has OI too!
Donating to the OI Foundation will help to insure that others with OI will have the opportunity to realize their goals with fewer limitations, access to new treatments, and more educated medical professionals equipped to properly care for them. To learn more about OI and the impact a donation could have please visit OIF.org