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Kristin Grubers fight against melanoma

Organized by: Kristin Eyer Gruber

Kristin's Photo

THE STORY:

I would like to take a moment to tell you about one of the most wonderful people I know. Kristin is one of the kindest and most giving individuals I know. Matter of factly, I met her through another friend who has spent the past couple of years helping her with her organization. Kristin started an organization called Mito Wishes Upon A Star. This organization pairs sponsors and families of children who have Mitochondrial Disease. This helps to give Christmas gifts to children who fight big battles everyday. For some families these gifts might be the only gifs that their child receives. Mitochondrial Disease can be very costly for families. Kristin is passionate about helping to bring joy into these wonderful children's lives. Kristin has been through so many medical challenges in the short time I have known her. She and her two children Nicholas and Joshua, have Mitochondrial Disease. In February 2013, Kristin was diagnosed with Stage 4 Melanoma. She had to have a wide excision surgery to remove the mole from her leg. The incision was so wide that it was not able to be closed with sutures. She had to have a skin graft from her left thigh. This is the same leg the melanoma was removed from. She then had to have lymph node biopsies to see if the cancer had spread. She had to undergo six different surgeries on her knee area to remove the cancer. She then consulted with an oncologist in her area. He told her that because of her Mitochondrial Disease that there was nothing that he could do for her. He gave her six months to live. Devastated and heartbroken she went to Cancer Treatment Centers of America. She was reassured by them that she did not have an expuration date. They also told her that they could help her. She underwent eight weeks  of radiation. She had one clean PET scan. Three months later another PET scan showed that she had cancer in 15 areas including her brain, back, bones and lymph nodes. She had another surgery to remove all of the lymph nodes in the groin area of the affected leg. She now has lymphadema in that leg. She then had to undergo both  chemotherapy and immunotherapy and radiation. The immunotherapy has permanently damaged her pituitary gland. It has also caused Addison's Disease, Hypothyroidism and high blood sugar. The cancer also caused her to have Pulmonary Embolisms two times. Once in November and the second time in February. She is now on bloodthinners to help with the Pulmonary Embolisms. But she is left with a permanently damged pituitary gland, Pulmonary Embolisms, Diabetes and Addison's Disease all as a result of the treatment drugs used for the Cancer. Kristin and her two sons Nicholas and Joshua have Mitochondrial Disease which is incurable and fatal. They all have respiratory issues, seizures, strokes, dysautonomia and gastroparesis. Joshua has a GJ tube and he is unable to gain weight. Nicholas and Kristin are able to eat small amounts of food. Kristin has a central line port which goes into her heart. This allows for her to have vital medicinces, daily infusions, and chemotherapy. On top of all that Kristin and her two boys endure, she recently found out that they will be losing their medical insurance. The money that is raised would be going towards medical bills and if extra is raised that would go towards daily living expenses. Kristin's husband, Peter works for Kraft. He recently found out that the plant is closing at the end of this year. Their insurance is through his job. I come to you and ask you all to please do the very best you can to help this amazing woman and her family out. Kristin has sacrificed and helped other families out for many years. I know that she loves doing this, but now she is the one that could use some help. Please if you are able to help bless this woman, who has blessed so many. It would be greatly appreciated. If you are not able to donate monetarily, please know that every share this gets will help to reach more people. I thank you all for your help. Love and Light,

Christen Brawley 

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Organized by

Kristin Eyer Gruber

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1 year ago

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