GO PHAR Research is a virtual walk, to benefit the new Pulmonary Hypertension Association Registry (PHAR).
High blood pressure in the lungs is called pulmonary hypertension (PH). PH is a chronic and life-changing disease that can lead to right heart failure if left untreated. PHAR is the key to helping to answer research questions with real world data, that will help advance care and quality of life for people living with PH.
Pulmonary hypertension is classified as a “rare disease” because only about 30,000 people in the U.S. have this diagnosis. Because there are so few PH patients, looking at data for patients from just one center will not provide enough information for researchers to make meaningful discoveries about PH. Analysts need to compile data from as many patients as possible to share with other health professionals and create best practices and standards of care.