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Heather Scanlon's Fundraiser:

Kure Kaige

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BENEFITING: GETTY OWL FOUNDATION

Heather Scanlon

THE STORY:

I am looking to raise funds that will ultimately help cure my son who has SMA type 1. I will be teaming up with The Getty Owl foundation which is a non profit organization. So all your donations will be tax deferred. Any amount will help me reach my goal. I also need some cheering on as I stumble through the mud and crawl under barb wire.

There is currently no treatment or cure for SMA, the #1 genetic killer of young children, but THERE IS HOPE! The National Institute of health has declared SMA the disease closest to treatment of more than 600 neurological disorders.

SMA Statistics:

1 in 6,000 births are to an SMA child

1 in 40 are carriers of SMA

A simple blood test can indicate if you are a carrier

All money raised will be benefiting the gene therapy program through Dr. Kaspar at Nationwide Children's Hospital in Columbus, Ohio. GETTY OWL FOUNDATION believes in the program. We believe there is hope!

 

DONATE

To This Fundraiser

$1,010

MONEY RAISED
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  • Anonymous

    $20

  • Dennis and Vie Hatzenbuehler

    $10

  • Mary Pak

    $50

  • Patricia Valverde

    $100

  • Oatmeal

    $50

  • Warwick Hayes

    $500

  • Anne

    $100

  • Juan

    $60

  • Kaige's Auntie

    $100

  • Nurse Hue

    $20

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101% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $1,010 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Nurse Hue

Nurse Hue

DONATION: $20

5 years ago

Kaige's Auntie

Kaige's Auntie

DONATION: $100

5 years ago

Juan

Juan

DONATION: $60

5 years ago

Anne

Anne

DONATION: $100

Happy Birthday Kaige! 5 years ago

Warwick Hayes

Warwick Hayes

DONATION: $500

5 years ago

Oatmeal

Oatmeal

DONATION: $50

5 years ago

Patricia Valverde

Patricia Valverde

DONATION: $100

Good luck on reaching your goal you two & on the race Heather, thanks for all that you do, keep inspiring us.... a big THANK YOU from my little guy Marco 5 years ago

Mary Pak

Mary Pak

DONATION: $50

5 years ago

Dennis and Vie Hatzenbuehler

Dennis and Vie Hatzenbuehler

DONATION: $10

5 years ago

Anonymous

ANONYMOUS

DONATION: $20

5 years ago