Kyah's Fund To Live
Organized by: Kyah Ikeman
Kyah Ikeman via Crowdrise
December 07, 2015
My name is Kyah Elaine. I'm 30 years old. I’m married to a wonderful man who I love more than mere words could ever express. I overthink things sometimes. I have been told that my laugh is infectious and my voice is calming. I am pretty much an expert at pedicures and manicures. I also have cancer. I've been down this road before. I had ovarian cancer as a teen which spread to uterine cancer when I became an adult. It was a hard fight but I did it. I beat them both. I continued on with my life as a proud, two time, cancer survivor. I worked, played, hung out with friends and found the love of my life. We met each other and connected on such a deep level. He came into my life and made me realize that genuine and pure love was possible. Our love was cemented when we became engaged and was set in stone when we became husband and wife.
A couple of months before my marriage, I started experiencing pains in my stomach. Numerous tests showed it was a uterine tumor. It was not cancerous but it did require surgery to be removed. Complications during surgery prevented the doctors from removing the entirety of the tumor. At the same time, I was also having strange symptoms unrelated to the uterine tumor. Headaches, mood swings and loss of equilibrium had been plaguing me for months. I chalked it up to stress but it was becoming a constant in my life. It was only when I fell down the stairs at a hospital and underwent a CT scan did I find out what was causing it. A tumor. Further testing has since shown that it is Gliobastoma Multiforme, Grade 2. A form of terminal brain cancer. The cancer that I twice fought so hard to beat,entered my bloodstream went to my brain and manifested itself into a malignant tumor. This time, I can't beat the cancer. This is a fast growing and aggressive form of brain cancer. The tumor is located in my cerebellum (aka “little brain.” It helps to control motor movement, coordination,equilibrium and muscle tone) and is surrounded by blood vessels. I was told that any type of operation might kill me instantly or put me in a vegetative state. But, that has changed. The tumor has started to grow rapidly and I need to have an operation. It went from the size of a pea to the size of a lemon in a matter of months. This amount of growth has exacerbated the way the tumor effects me. I already was dealing with constant headaches and hand tremors. Vision and memory loss along with seizures are now a part of my daily life. The only way to possibly prevent these symptoms is for doctors to operate and remove part of the tumor. If I don't have the operation, I may not live to see the entirety of 2016. If I do have the operation, the threat of instantaneous death and no longer being able to function on my own, becomes even more of a reality. On top of all of that, my insurance is no longer reliable and that is severely affecting how much access I have to the medications and the medical care I need,including the operation that I must have. To round it all out, due to unforeseen circumstances, I am currently unemployed and will be for teh foreseeable future. All of these things combined are why I am starting this fund. I want to live. I need to live. I want to have some semblance of normalcy in my life. This fund will help with that tremendously.
I am dealing with all of this the best way I can. Each day I wake up and hope that I feel better than the previous day. I hope that the day is a non seizure day. I hope that I can hold a glass in my hand without my hand trembling involuntarily. I hope that the headaches aren't bad enough to make even the smallest amount of lighy feel like one thousand suns shining into my eyes. Some days getting out of bed and facing a new day requires a battle of will and determination. I just want the chance to live. I want the chance to be a wife. I want a chance to live for as long as I can. This fund can aid in giving me that chance. This a life fund. A living fund. I have not let cancer stop my life before and I refuse to let it stop me now. Thank you for taking the time to read my story.