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Kyle's Medical Fund

Organized by: Kyle Nemeth

Kyle's Photo

THE STORY:

-My name is Kyle, I am 21 (22 in June). When I was 5 years old I started to become fascinated with computers, and started to play around with them. Network Administration and Software Programming became my passions. I love almost everything to do with computers. When I was in grade school I noticed I was having problems Walking up stairs, getting out of chairs. I have recently managed to be diagnosed with Myotonic Dystrophy, in addition to having Rigid flat feet.

-Myotonic Dystrophy is a chronic, progressing, multi-systemic disease that is characterized by wasting of the muscles, cataracts, heart conduction defects, endocrine changes, and myotonia. It causes the muscles to lock up after use. (Ex. You grip the steering wheel then cannot immediately let go because you can't let go, and if you try it's painful.) It can also cause an early death.

-I have been seeing a lot of different doctors recently, and started a lot of treatments. I have started physical therapy, medication, testing, orthoses. Over the next year the cost will be around $18,000 at the current rate. The genetic testing alone is around $8,000.

-I feel blessed to have a supportive and loving family, but they cannot cover all these costs alone. In the first month of treatment and medication we have already spent more than $1,500. For that reason I need your help. I want to be able to do the activities I enjoy without constant pain and my muscle becoming so stiff I can't move them. I am only 21 and wish to enjoy the rest of my life doing what I love. Please help me live a semi-normal life.

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Organized by

Kyle Nemeth

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