Lymphedema Advocacy Group Board
My name is Julie Hanson and I am the event coordinator for this fundraiser and a member of the Executive Committee for the Lymphedema Advocacy Group. I am also a physician, and mother of 20 year old Sophia who has primary lymphedema. I became a lymphedema therapist after her diagnosis so that I could learn as much as possible about the disorder.
To say the Lymphedema Treatment Act is close to my heart would be an understatement to say the least. As the mother of a child with this incurable disease, I am deeply invested in the cause. But especially knowing, in excruciating detail, exactly how the disease marches on and progresses without proper care makes the lack of coverage for the supplies needed to stabilize it all the more maddening.
Medicare and Medicaid have traditionally set the standard for minimum insurance coverage in the United States however they provide NO coverage for the supplies needed to control lymphedema. Our bill could have far reaching implications. The bill aims to create a category under which the compression garments and supplies may be covered. This is not a blank check. As per usual, regulation will follow legislation. Once the bill passes, we will move to participate as much as possible in the regulatory process by which minimum coverage amounts of the supplies will be set. The goal for now though is just to make it possible for garments and supplies to be covered.
This walk will be great fun! Please help us make it a success!
Together We Can Pass the Lymphedema Treatment Act!
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