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Carissa Vaughan's Fundraiser:

Laina's Walk Strong

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Laina's Progress
February 02, 2017

Hi Everyone! Firstly, we would like to thank everyone for your generous donations. It means so much to our family to have such a great outpouring  See more

BENEFITING: Cure JM Foundation

EVENT: Walk Strong to Cure JM - Chicago

EVENT DATE: May 07, 2017

Carissa Vaughan

THE STORY:

Juvenile Dermatomyositis (JDM) is a rare and life-threatening autoimmune disease. The body's immune system attacks its own cells and tissues causing inflammation. 

Laina was diagnosed with Juvenile Dermatomyositis one month before her 5th birthday. It took us two years, seven different doctors, three hospitals and two different states to finally get the answers we were searching for. This disease causes such severe muscle weakness Laina could barely walk by the time we got her to the doctor she needed. Additionally, she had severe arthritis in her hands and other areas of her body. She also displayed the "typical" facial rash & inflammed capilaries, which allowed Dr. Santiago (Rheumatologist) to diagnose within five minutes of seeing us for the very first time. The treatment process was quite aggressive at the beginning, we stayed at All Children's Hospital in St. Petersburg FL for several days. The physical improvement was noticeable almost immediately. After three days of intense steroids, she was able to walk and get out of bed with less assistance. Now just over a year and a half later she is doing things I had once wondered if she would ever be able to; walking up stairs, running, jumping, writing, cutting with scissors, buckling her own seat belt. Because there is no cure for JDM our current struggle is remission. Long term use of steroids is harmful to the body, and unfortunately each time we have tried to lower doses she experiences a relapse. There aren't a lot of treatment options available for kids with myositis that is why Walk Strong to Cure JM is important to our family. Funds raised for Cure JM can help aide more research for potentially better treatment options. There is no cure for JDM. The research conducted to find effective treatment methods is all possible because of donations. By raising money to help fund Cure JM we hope to one day have a cure!

 

Cure JM Foundation® is a 501(c)(3) nonprofit organization focused on finding a cure for Juvenile Dermatomyositis (JDM) and Juvenile Polymyositis (JPM), the rare and life-threatening autoimmune diseases collectively known as Juvenile Myositis (JM).

DONATE

To This Fundraiser

$1,303

MONEY RAISED
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  • Loretta Lynn Leda

    $25

  • Kayla Widler

    $100

  • Mrs. Jakobsze

     

  • Chloe and Vanessa Madden

    $50

  • Schultz Family - Avery

    $50

  • The Reams Family

     

  • Jackson Segatto

     

  • Sheila Jarosz

     

  • Kim Tode and Tyler Kessler

    $100

  • Drew and Jessica Zitzke

     

  • Melissa Carncross

    $50

  • Lisa Smith

    $100

  • Tom Southwood

     

  • Dickey Family

     

  • S Keyes

     

  • Loretta Lynn

    $25

  • Liberty Elementary Students & Staff

    $83

  • Carissa Vaughan

    $50

  • Kurt Zitzke

    $50

  • Theodora Vaughan

     

  • Sue and Ed Spahn

    $50

  • Kathy Henry

    $100

  • The Drake family

    $25

  • Andrew Paszkowski from Laina's class

    $20

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87% Raised of $1,500 Goal

Fundraise for this Campaign

The Team: $1,303 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Carissa Vaughan

Amount Raised

$778

 

52% Raised of $1,500 Goal

Fundraiser Title

Janet Zitzke

Amount Raised

$200

 

20% Raised of $1,000 Goal

Fundraiser Title

Barbie Spahn

Amount Raised

$175

 

35% Raised of $500 Goal

Fundraiser Title

Kurt Zitzke

Amount Raised

$150

 

75% Raised of $200 Goal

Donor Comments

 Andrew Paszkowski from Laina's class

Andrew Paszkowski from Laina's class

DONATION: $20

11 months ago

The Drake family

The Drake family

DONATION: $25

Hope you have a great walk! 12 months ago

Kathy Henry

Kathy Henry

DONATION: $100

12 months ago

Sue and Ed Spahn

Sue and Ed Spahn

DONATION: $50

12 months ago

Theodora Vaughan

Theodora Vaughan

12 months ago

Kurt Zitzke

Kurt Zitzke

DONATION: $50

12 months ago

Carissa Vaughan

Carissa Vaughan

DONATION: $50

For my sunshine 12 months ago

Liberty Elementary Students & Staff

Liberty Elementary Students & Staff

DONATION: $83

12 months ago

Loretta Lynn

Loretta Lynn

DONATION: $25

Thank you Barbie, Go Latina 12 months ago

S Keyes

S Keyes

I will keep your daughter and your family in my prayers. 1 year ago