BENEFITING: PCDH19 ALLIANCE
There is currently know effective treatment for PCDH19, and the treatments that are available can have long lasting effects on cognition, memory, mental health. PCDH19 Epilepsy is a disease that can be devastating and deadly and leaves children and parents in fear of when the next seizure will strike and will it be the one that takes their life. 34% of sudden childhood deaths are caused by seizures, and the PCDH19 Alliance is in a race against time to fund research to find a treatment. The Alliance was founded and is run 100% by volunteers, most of us are parents desperate to save our children and the rest of us are physicians, world-class researchers, and other medical professionals who have joined together with a strong sense of urgency and relentlessness to find an effective treatment and save lives. We can't do this alone, we need your generosity to fund this cutting edge research being done at institutions such as Stanford and University of Melbourne. Will you join us?