When I was first diagnosed with pulmonary sarcoidosis in 2004, I was a young mom that had just went through a traumatic miscarriage and I didn't completely understand the diagnosis. Since I didn't appear to be having any symptoms, I was sent on my way and was told to have follow ups and the sarcoidosis would probably go away on its own. Life was hectic and the babies kept coming (I have 8 beautiful daughters) and so I didn't have the regular checkups. Then, in the Fall of 2014, I started noticing increasing shortness of breath, wheezing and chest discomfort. So, I thought I should get that sarcoidosis thing checked out again. I was given the bad news that the sarcoidosis was still there and had spread throughout both my lungs, causing scar tissue, and stealing a portion of my lung capacity. It was confirmed that my cause was indeed chronic. After over a year of prednisone, the inflammation appears to be under control. I will have to regular xrays, eye exams (it can attack your eyes!), and an EKG (heart involvement is also common and also very dangerous). I have heard many stories of people suffering so intensely from this disease or the terrible side effects they experience from the treatments. My experience seems like nothing compared to theirs. I want to do this to further research for this disease to provide better treatments and ultimately a cure!