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Lets Help Sam Roll Into The Future

Organized by: MichelleandLouis Maurina

MichelleandLouis' Photo
MichelleandLouis' Photo
MichelleandLouis' Photo
MichelleandLouis' Photo
MichelleandLouis' Photo
MichelleandLouis' Photo
MichelleandLouis' Photo

EVENT DATE Sep 06, 2014

THE STORY:

Samantha is 9 years old, loves getting her hair and nails done, swimming, and planting flowers with her Dad. She also loves singing karaoke, cooking, and playing with/harassing her big sister. She does great in school, has plenty of friends, and even knows how to sew on a sewing machine like grandma used to use! She insists she wants to be a teacher when she grows up.

But Sammie was diagnosed with Ullrichs Congenital Muscular Dystrophy, for which there is no treatment or cure. The past year has been extremely difficult for her. She started the school year still being able to walk with assistance, but by the end of the year, the disease had progressed so much that her father had to borrow a wheelchair in order to keep her mobile.

It's a long road ahead for her, and the doctors have told her father that Sam would now need a power chair to get around, and she will also need an EasyStand for the home so she can stand up and keep the blood flowing to her legs. In addition, she'll need physical therapy 3x a week to stretch out all of her muscles.  

Samantha's father has been trying to provide for all of her medical needs on his own, and has been struggling trying to do so. He has spent the last three years family "vacations" at the National Institute of Health in Bethesda, MD with his two girls, putting Sammie through extensive testing, MRI's, and more. She has to endure even more testing twice yearly at St. Charles Hospital in Port Jefferson, NY at the Muscular Dystrophy clinic that they have there. She had serial casting done on her legs this past year, and needs to wear legs braces both day and night.

While no child should have to go through all this, Sam takes everything in stride, and always has a smile on her face. This new wheelchair would help her be able to stay active and enjoy her childhood. It is motorized and would grow with her into her teenage years. We anticipate the cost of all these needs to be in excess of 15k. Any help you can give is extremely appreciated. Let's help keep Sammie rolling!

$15,200

 

101% Raised of $15,000 Goal

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  • MichelleandLouis Maurina

     

  • Frankie G. and Dawn

     

  • Brittany Darling

     

  • Wendy Sheaar

     

  • Tricia Seidenspinner

     

  • Barbara , George moritz

     

  • Matthew's Giving Tree

     

  • MariaChaCha

     

  • Debbie Miller

     

  • Jodi DeNicola

     

  • In Memory of Maryanne Sanchez Rogus

     

  • Ryleigh Benes

     

  • Janet Hotis

     

  • Craig Hassel

     

  • Laura Mastrocco

     

  • Amy Zauner

     

  • Archacki Family

     

  • The Bresalier Family

     

  • Ted R.

     

  • Jack and Krissy

     

  • Big Dan

     

  • Josh and Joann

     

  • Joe and Tracy

     

  • Donna Kostuk

     

  • The Coppolas

     

  • Donna Kostuk

     

  • Lisa Landsman

     

  • Arlene & Joe Trabona

     

  • Joe and Bernice

     

  • Laurie Pavone Panetta and Family

     

  • Anonymous

     

  • Armadillo Terry

     

  • Diana Cecchini

     

  • Lisa Llinares Wolf

     

  • SMF MML

     

  • Dan Gambardella Memorial Fund

     

  • DPHS Class of 1983 Alumni

     

  • Heidi Ascoli

     

  • Dan & Lisa Vahey

     

  • cam

     

  • The Miller-Calandra Family

     

  • Anonymous

     

  • Katie & Chloe Goehle

     

  • Kristine Tavantzis

     

  • Cheryl Forster

     

  • Frank

     

  • Elaine & Richard Colapinto

     

  • Drew & Joan

     

  • Nancy Esposito

     

  • Anonymous

     

  • Jennifer Ariosto

     

  • Joyce Cannini Jordan DP83WINNER50/50

     

  • Heidi Payne

     

  • Michael Jude Duer

     

  • Annette Muklebust

     

  • Sharon and CJ

     

  • Rick & Julieann

     

  • Kim

     

  • Ryan & Danielle Beickert

     

  • Cane Peterson

     

  • Colin

     

  • Mary Ellen

     

  • Lynn Forman Orfinger

     

  • Tricia Carter-Polstein

     

  • Maria & Robbie

     

  • Mr. Shalam

     

  • Richard and Mary Morrison Foundation

     

  • The Cicala Family

     

  • Mira Oncale-Tippit

     

  • Dylan Smith

     

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Organized by

MichelleandLouis Maurina

This is a direct to organizer fundraiser.

Fundraise for this Campaign

The Team: $15,200 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Joseph Aupperlee

Amount Raised

$13,700

 

91% Raised of $15,000 Goal

Fundraiser Title

MichelleandLouis Maurina

Amount Raised

$1,200

 

8% Raised of $15,000 Goal

Fundraiser Title

Debbie Miller

Amount Raised

$300

Donor Comments

Dylan Smith

Dylan Smith

Get better sweetheart! 4 years ago

Mira Oncale-Tippit

Mira Oncale-Tippit

4 years ago

The Cicala Family

The Cicala Family

4 years ago

Richard and Mary Morrison Foundation

Richard and Mary Morrison Foundation

4 years ago

Maria & Robbie

Maria & Robbie

4 years ago

Mr. Shalam

Mr. Shalam

4 years ago

Tricia Carter-Polstein

Tricia Carter-Polstein

4 years ago

Lynn Forman Orfinger

Lynn Forman Orfinger

4 years ago

Mary Ellen

Mary Ellen

4 years ago

Colin

Colin

4 years ago

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