EVENT DATE: May 31, 2015
Levi was diagnosed with a rare disease called Sanfilippo Syndrome or MPS III C in 2009. Sanfilippo Syndrome currently has no cure or treatment. At the age of 16 Levi is so full of life! He has a smile that will melt your heart and a laugh you will never forget. He loves to give big hugs and shows a lot of affection to those around him. He is still very mobile and keeps us busy. Levi is a blessing to our lives. Please join us for a day of fun while we Tee Off For A Cure. We HOPE to raise a lot of money that will go towards research for a CURE!