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Lili Rose aicardi life

Organized by: Liliana Ramos

Liliana's Photo

THE STORY:

Liliana Rose Royal is 6 years old she is diagnosed with Aicardi Syndrome, a rare and frightful condition that includes multiple seizures, ACC (missing center piece of brain) Lacunae in the retina of her eyes .. she is non-verbal non-mobile has a Mic-key g-tube button and is incredibly beautiful....quality of life is key...she deserves to be healthy happy loved...xo

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Organized by

Liliana Ramos

This is a direct to organizer fundraiser.

Donor Comments

Liliana is still setting up this fundraiser so please check back so you can support Lili Rose aicardi life.

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