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Lillian Nykodym's Fan Club

Organized by: Meagan Ciesla

Meagan's Photo
Meagan's Photo
Meagan's Photo
Meagan's Photo
Meagan's Photo
Meagan's Photo
 

Meagan Ciesla via Crowdrise
September 11, 2015

Lilly's surgery has been delayed until Tuesday, September 15th. This week she received a heart catheterization, which went well. More soon. See More

THE STORY:

Lilly is officially on the road to recovery. After several weeks at Boston Children's Hospital she was discharged and is soon headed home to recuperate. Thanks to everyone for your incredible support!

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A HUGE thanks to everyone who organized and attended the Pizza Picnic for Lilly on August 21st. Thanks to the generosity of attendees we were able to raise another $2,000 for baby Lilly! The family is in Boston now and we'll give an update once there is news to report.

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Lilly's Story

Lillian Rose Nykodym is a sweet, giggly baby and a real trooper. Born in November 2014, Lilly was soon after diagnosed with an incredibly rare genetic syndrome called Mowat-Wilson. Since her birth she's been in and out of hospitals due to health complications and has already undergone four surgeries. Soon Lilly, Christina, and Dave will be travelling to Boston Children's Hospital where Lilly will undergo open-heart surgery in September with a lengthy recovery time.

The past year has been a tough one so we're asking Lilly fans to rally together and raise funds for medical and travel expenses so Christina and Dave have one less worry on their minds.  

REGISTER

$17,597

 

176% Raised of $10,000 Goal

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  • Mark & Jackie Grzebin

    $100

  • Andria Lavine

    $100

  • Valerie Scicchitano

    $100

  • Anonymous

    $50

  • Mary & Jerry DiGiovanni

    $100

  • Jack & Betty

    $500

  • Barbara and Tom Kiley

    $101

  • Joan Goldfein

    $100

  • Julie, Ryan, and Charlie Flatt

    $100

  • Jami Nydegger

    $100

  • Shameer Ladha

    $100

  • Leslie McCarthy

    $50

  • DeMarino Family

    $150

  • David Kaufman

    $50

  • CAP

    $75

  • Old Aunt Ranger and Uncle Gus

    $200

  • Ann and John Dooley

    $100

  • Tonya and Leslie

    $25

  • Aunt Nina and your Juffey Cousins

    $100

  • Linda and Steve

    $50

  • Nancy Gorman

    $50

  • Harry Smith

    $100

  • Sarah, Jason, H, Grace, Anna, and Anthony

    $300

  • Anonymous

    $200

  • Tina Mercurio and kids

    $100

  • The Krisch Family

    $100

  • Turi cousins and Aunt Nina xxxxxxx

    $250

  • Gail & Lou Porrello

    $100

  • John and Jackie and Family

    $300

  • Frank Monteleone and Vincent DiDaniele

    $50

  • James and Mary Griffin

    $100

  • Sarah Bantz & Shauna Marquardt

    $100

  • Tracy Wise

    $100

  • Susan Bouza-Gielbeda

    $100

  • Liz and Frank Bouza

    $150

  • Aunt Robin

    $100

  • Leanne and Dave

    $100

  • Anonymous

     

  • Anonymous

     

  • Steve McFadden

    $50

  • Uncle Peter, Aunt Raina, Josie, Maddie,and Ariana

    $300

  • Ryan and Okyu

    $100

  • Eileen Abramson and family

    $100

  • Iris and Rich Grucela

    $150

  • Dennis & Crystal Broz

    $100

  • betty and dennis ciesla

    $100

  • The Varrichio Family - Mark, Maria, Jackie and Margot

     

  • Louis Rossi

    $100

  • Frank, Diane , Robyn, Laura Nykodym

    $150

  • Gail & Ron

    $200

  • Scott Lair

    $20

  • Uncle Sam and Aunt Rena

    $300

  • Jerry & Sharon Heckman

    $100

  • Jeff & Andrea

    $100

  • Robyn & Neil morgenstern

    $100

  • Mary & Lou Barba

    $50

  • Aunt Sally

    $50

  • Willa

    $100

  • Gerti

    $200

  • Janet Barry

     

  • Diane Nelson

    $50

  • Erin O'Beirne

    $100

  • Bob and Arlene Cohn

    $50

  • Greg and Meghan Lavine

    $100

  • The Rowans

    $100

  • Monique & Steven Vaccaro

    $100

  • Dianne & Pat

    $250

  • Patricia Caiozzo

    $100

  • Elaine Paul & Everyone at Gus Paul Pools.

    $200

  • Brie Jaquette

    $50

  • Andy and Randall Rogers

    $100.09

  • Anonymous

    $1,000

  • Dr & Mrs Walter A Sevian

    $200

  • Jeremy & Darci

    $200

  • Mark, Maura, Olivia and James Lynn

    $150

  • Lenny Akselrod

     

  • David and Lynette

    $100

  • Tom & Diane Crino

    $100

  • James Bromfield

    $100

  • Bernadette and Eddie

    $100

  • Brooke

    $1,000

  • JSMO

    $300

  • Anonymous

    $50

  • DE NISCO FAMILY

    $150

  • Anonymous

     

  • Alison and Chris

    $50

  • Kim and Matthew

    $100

  • Patrick McGreal

     

  • Wayne Zade

    $25

  • Charles McKenna

    $200

  • Dori and Elli Levy

     

  • Aunt Gen and Paula Nicolosi

    $100

  • Tom & Kara Crino

    $50

  • Carl and Carol Nicolosi

    $100

  • Brett & Natalie Trimarchi

    $300

  • Nicholas Friedman

    $50

  • Mike, Ronda, Shelby and Delaney Homolka

    $75

  • The Downtown Cafe

     

  • Marion (Crino) Petraccaro and Larry Petraccaro

    $50

  • Joyce Stewart and Michael Knievel

    $100

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Organized by

Meagan Ciesla

This is a direct to organizer fundraiser.

Fundraise for this Campaign

The Team: $17,597 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Meagan Ciesla

Amount Raised

$16,597

 

166% Raised of $10,000 Goal

Fundraiser Title

Harry Smith

Amount Raised

$1,000

Donor Comments

Joyce Stewart and Michael Knievel

Joyce Stewart and Michael Knievel

DONATION: $100

3 years ago

Marion (Crino) Petraccaro and Larry Petraccaro

Marion (Crino) Petraccaro and Larry Petraccaro

DONATION: $50

Thoughts and prayers are with you and your family. 3 years ago

The Downtown Cafe

The Downtown Cafe

3 years ago

Mike, Ronda, Shelby and Delaney Homolka

Mike, Ronda, Shelby and Delaney Homolka

DONATION: $75

3 years ago

Nicholas Friedman

Nicholas Friedman

DONATION: $50

3 years ago

Brett & Natalie Trimarchi

Brett & Natalie Trimarchi

DONATION: $300

3 years ago

Carl and Carol Nicolosi

Carl and Carol Nicolosi

DONATION: $100

3 years ago

Tom & Kara Crino

Tom & Kara Crino

DONATION: $50

3 years ago

Aunt Gen and Paula Nicolosi

Aunt Gen and Paula Nicolosi

DONATION: $100

3 years ago

Dori and Elli Levy

Dori and Elli Levy

sending lots of love, hugs and luck! xoxo 3 years ago

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