BENEFITING: The Charcot-Marie-Tooth Association
EVENT DATE: Sep 30, 2014
Charcot-Marie-Tooth (pronounced SHARK-o-Marie-Tooth) is a serious disease with an odd name. The 'I Tri for Charcot-Marie-Tooth' fundraising campaign benefits the Charcot-Marie-Tooth Association, with fundraising efforts running throughout the 2014 triathlon season. The goal of the fundraiser is to raise $3000 for the CMTA while raising awareness about this life-altering disease.
Charcot-Marie-Tooth (CMT) is an inherited disease. Most people who have it develop peripheral neuropathy. This means CMT sufferers have pain, weakness, numbness, and muscle loss in their extremities - usually the legs. This often leads to lifelong pain and disability. There is no known treatment for CMT, and because it is relatively rare (~2.8 million people in the world are diagnosed with CMT), there's not a huge volume of research going on to find a cure. The Charcot-Marie-Tooth Association is seeking to change that, and to give support to people living with CMT.
This is a personal crusade - my family is affected by Charcot-Marie-Tooth. One of my family members is in a wheel chair because of CMT. Another is young, but has been unable to work for nearly a year due to CMT-related pain. Another is also young and suffers from a CMT complication that affects the heart.
I'm doing all my triathlons and running events this year in honor of everyone living with this disease who can't participate in these endurance events. In addition, if I do raise $3000 by the end of September, I pledge to register for and compete in a 70.3 triathlon event in 2015 - to continue to raise awareness and support for all those suffering from this disease.
Thank you so much for your support!