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Linda Santos' Fundraiser:

Savannah PH Support Group - GO PHAR

Linda's Photo
 

Ready ...Set... GO PHAR
July 08, 2016

ok everyone let's do this!!  See more
Linda Santos

THE STORY:

Hi i have IPAH and was diagnosed in 2008. I was then given 2-5 years to live. I was recently elected to be the PHAR patient representative for this new registry and would be delighted if you helped me set an example for others to follow! Help me join the fight against PH!

Are you ready to accelerate pulmonary hypertension research?  

At the Pulmonary Hypertension Association (PHA), we’re putting our heart into a cure – and we know that cure will come from research. That’s why so many in the PHA community have joined Go PHAR Research, a virtual walk to benefit the new Pulmonary Hypertension Association Registry (PHAR) and the continued rollout of PHAR into the Centers of Comprehensive Care accredited Pulmonary Hypertension Care Centers initiative.

PHAR is the key to helping answer research questions with real world data to advance care and quality of life for people living with PH. The program differs from past registries that were privately funded and only addressed specific questions. PHAR, with contributions from the PH community and information from PHCC accredited centers, will track diagnostic and treatment patterns at a national level, ultimately demonstrating quality improvement for the care of PH patients at these institutions.

The Go PHAR Research initiative was just launched at PHA’s 2016 International PH Conference and Scientific Sessions and the response has been incredible. More than 230 people have already joined, pledging more than $25,000 in support. The Go PHAR Research community tasked with testing this incredible program has already taken an astounding 872,273 steps towards a cure for PH.

 

DONATE

To This Fundraiser

$2,260

MONEY RAISED
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  • Annice and Byron

    $100

  • Jen Sale

    $100

  • Jim Thomason

    $250

  • Christian Higgins

    $25

  • Anonymous

    $25

  • Kevin Allen

     

  • Dad

    $100

  • Mike Robertson

    $200

  • Robbie Morton

    $50

  • Donna Mahony

    $100

  • James Tuplin

    $25

  • Linda Adams

    $50

  • Joseph Higgins

    $100

  • Stefan Wiegard

    $100

  • Alan Dunn

    $50

  • Nico Zeifang

    $250

  • Anonymous

    $150

  • Herschel and Danielle Lariscy

    $50

  • Bob Callow

    $25

  • Anonymous

    $25

  • Jeffrey, Melissa and Richard Gabriel

    $100

  • Paul Mullen

     

  • Helki Weber

    $50

  • Allman Chase

    $50

  • James McCauley

    $60

  • Col Foley

     

  • David and Renjie

    $50

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75% Raised of $3,000 Goal

The Team: $2,260 TOTAL RAISED SO FAR

Fundraiser Title

Brian Gilbert

Amount Raised

$2,260

Fundraiser Title

Linda Santos

Amount Raised

$0

 

0% Raised of $3,000 Goal

Fundraiser Title

Don Newman

Amount Raised

$0

Donor Comments

David and Renjie

David and Renjie

DONATION: $50

2 years ago

Col Foley

Col Foley

2 years ago

James McCauley

James McCauley

DONATION: $60

2 years ago

Allman Chase

Allman Chase

DONATION: $50

2 years ago

Helki Weber

Helki Weber

DONATION: $50

2 years ago

Paul Mullen

Paul Mullen

2 years ago

Jeffrey, Melissa and Richard Gabriel

Jeffrey, Melissa and Richard Gabriel

DONATION: $100

Go get em Charlotte! 2 years ago

Anonymous

ANONYMOUS

DONATION: $25

2 years ago

Bob Callow

Bob Callow

DONATION: $25

2 years ago

Herschel and Danielle Lariscy

Herschel and Danielle Lariscy

DONATION: $50

We are donating to help save the life of our precious friend. 2 years ago