BENEFITING: CLEAR THOUGHTS FOUNDATION
EVENT DATE: May 05, 2013
In 2008 I was in my freshman year of college, blissfully unaware of the saddening diagnosis that was communicated to my family back home in Pittsburgh, PA.
My uncle, DJ, was diagnosed with FTD, Frontotemporal Dementia, or Pick's Disease. This rare disease is both deadly and incurable, and has unfortunately diminished the charismatic, inspiring, and brilliant uncle that I love. I am more than blessed to have an uncle such as DJ, and working towards finding a cure for this is the least that I owe him for all of the joy he has brought to my life and childhood.
In response to this diagnosis, members of our family started The Clear Thoughts Foundation that seeks to support companies locally and nationally that are involved in early stage drug discovery. Though nearly 50% of Americans will be personally affected by a form of Dementia by the time they reach 80 years of age, there is extremely limited research and funding going towards finding cures and drugs to help stop dementia onset and progression.
On May 5th I run for my uncle DJ who taught me the beauty of being true to yourself. I run for my entire family who has remained steadfast in our support of each other throughout these last couple of years. Had it not been for the drive and passion of DJ’s daughter, Hayley, son, Matt, and wife, Sandy I would not be able to express my support of my uncle’s fight through such a noble cause.
I also, however, run for DJ’s two late siblings: my aunt, Jill Jameson and uncle, Woody Jameson both of whom tragically and suddenly left this earth in late 2010 and early 2011. I run for them, because this is what they would have wanted, and I run for DJ’s last remaining sibling, my mother, who has been a beacon of light for this family and whose strength has inspired me to take on this challenge.
All donations to The Clear Thoughts Foundation for my marathon support will go towards working to find a cure to this affliction so that we can minimize families, such as ours, who are affected by this every day.
I cannot thank you enough for your support, and should you have any specific questions about the foundation feel free to contact me directly at firstname.lastname@example.org & I will be happy to put you in touch with my cousin Hayley, a founder of the organization.