In 2013, I was diagnosed with a rare condition called syringomyelia. I have a syrinx, fluid filled cavity, in my cervical spinal cord creating a variety of symptoms while blocking signals from my brain to the rest of my body. Syringomyelia does not have a cure. I have decided to register for the Denim Dash to help raise awareness for the rare disease community. I am not asking anyone to register or donate, but to join me while I walk the Denim Dash the week of March 19-27. If you can't join me personally, you can walk, run, swim, skip, or bike on your own and send me a picture. :) It doesn't matter how you achieve the miles as long as you have fun! The dash is a 5k (3.1miles). I am looking forward to walking with you and thank you for your support and encouragement as I walk through this condition!
Join us for the 2nd Annual Virtual Denim Dash!
The virtual Dash will be held on Saturday, March 19 through Sunday, March 27, 2016 and the Southern California Local Dash will take place on Wednesday, March 23, 2016 at the Global Genes headquarters in Aliso Viejo.
DENIM DASH 2016 NET PROCEEDS:
Net proceeds from both the Virtual Denim Dash 5k, and the Local Dash will go directly back to the Rare Disease Community through Global Genes' RARE Patient Impact Grant. That's what makes this Dash so different from others, the funds you raise through the Denim Dash go directly into a program that positively impacts the rare community!
Supporters from all over the world will run/walk/swim/bike or roll 3.1 miles to support the RARE Community. The DENIM Dash 5k for Rare Disease is virtual, so you have the flexibility to participate wherever, whenever is most convenient for you as long as you Dash anytime between March 19th-27th!
Please join us in this incredible opportunity to raise awareness for those you are dashing for, all while supporting the Rare Disease Community as a whole through raising funds for Global Genes' RARE Patient Impact Grant.