BENEFITING: National Fragile X Foundation
EVENT DATE: Oct 11, 2014
This is our family. Adam is the little guy in the front and center - as he is in most things! Adam is a five-year old with places to go, people to see. All you have to do is tell him "let's go", and he's off to find his shoes.
Adam may not talk much, but he definitely knows how to tell you what he wants. He was diagnosed with Fragile X Syndrome when he was only fourteen months old. Fragile X Syndrome is an inherited genetic syndrome that affects a person's intelligence, behavior, and can cause delays in speech and language development. It is also the most common known cause of autism. So far, there is no cure.
Once we were over the inital shock and grief, we went straight to the internet to find local support groups. The Kansas Fragile X Group was right there when we needed them. They have given us so much support, encouragement, and education; our family is at a better place than we ever could have been without them.
The Kansas Fragile X Group has a mission to enrich lives through emotional and educational support, promote public and professional awareness, and to advance research towards improved treatments and a cure for Fragile X-associated disorders. Together with the National Fragile X Foundation, they work to support families like ours who are touched by the many different facets of the Fragile X mutation.
We would love for you to come and walk with us on October 11, 2014 at Shawnee Mission Park Shelter #2 in Shawnee, KS. You can join our walk team “Adam's Army” by going to this site and clicking on Join Now to register. Make sure to join our team when it asks you to choose. If you are not able to come walk with us but would like to make a donation on-line, please click on Donate.
We thank you so much for your support, and we would love to see you on October 11th!
4th Annual Walk for the Faces of Fragile X!
Shawnee Mission Park 7900 Renner Road, Shawnee, KS Shelter No. 2
Registration begins at 9 am, Walk starting at 10 am followed by lunch, silent auction and more!
Activities include: live music and entertainment, a silent auction, a scavenger hunt for kids, face painting and more!
The funds raised will go to support the Kansas Fragile X Group's year-long efforts which include scholarship programs, educational seminars and family social events.
Thank you for supporting our mission which is to unite families challenged with Fragile X, to enrich lives through emotional and educational support, promote public and professional awareness, and to advance research toward improved treatments and a cure for Fragile X.