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Little Cole's Well-being

Organized by: Loren Estes

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one more thing
March 29, 2016

Both Tina and I love God and believe in Jesus Christ. Here is the heartbreaking thing. Tina prays hard every night that God will make her little See More

THE STORY:

My girlfriend has a wonderful little boy -Cole. Cole has a very challenging life, he has Lennox-Gastaut syndrome. To learn more about this syndrome, you can look at this website: http://www.epilepsy.com/learn/types-epilepsy-syndromes/lennox-gastaut-syndrome-lgs But let me describe it in their life...he has Grand Mal Seizures quite frequently, as well as drop seizures, which often require him to wear a helmet. Further, he has very severe autism. At the age of eleven, he has a vocabulary of about 13 words or so, like 'hungry', 'thirsty', 'tired', and so forth. Now Tina has tried just about every medication and treatment, including strict and difficult diets. Nothing is helping, really. And though often, children with LGS improve, sometimes significantly over time, Cole will not. It is only getting worse, the seizures are severe and damaging his already limited cognitive functioning. And the real issue we are having, the one we may be able to do something about, is his behavior, especially at school. He hits and kicks other students and teachers at school, when he gets unhappy, which considering his capacity for expressing himself is quite understandable. The problem is that the school system is constantly threatening to expel him for this behavior, at which point, what will we do? There is some hope that by giving him CBD oil, he will be much calmer and be able to control himself. The problem is, insurance will not cover it, which is just ridiculous, and I believe based on a very un-progressive mind-set. Anyway, Tina is having to come up with 800-1000 a month to cover the cost of this, which is not maintainable for her. Please help her and Cole. This is very upsetting for her, because what we feel , as far as helping him, is possible, but out of reach. Thank you for reading this and thinking about it.

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Loren Estes

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