Miss Getty is one of my inspirations. When I heard about my friend Kate's daughter, Getty, being diagnosed with spinal muscular atrophy (SMA1). I wished that there was some thing that I could do to help support this amazing family. When I heard they were forming a team of runners to run and raise funds to help find a cure, I signed up. Spinal Muscular Atrophy is a neuromuscular disease that slowly robs the body of muscle and ultimately compromises swallowing and breathing. There is currently no treatment and no cure, but the National Institutes of Health (NIH) selected SMA as the disease closest to treatment of more than 600 neurological disorders. Remember every dollar is one step closer to finding a cure. If you can not support financially, you can help support SMA families by getting the word out about SMA. 1 in 6,000 births are to an SMA child. 1 in 40 people are carriers of SMA. A simple blood test can indicate if you are a carrier. Thank you for your support in helping to bring an end to the #1 genetic killer of children under the age of two. Check out gettyowl.org to learn more about SMA and Getty's story.
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