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Elizabeth De Virgilio's Fundraiser:

Liz Runs for The American Nystagmus Network

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BENEFITING: AMERICAN NYSTAGMUS NETWORK

EVENT DATE: Sep 22, 2013

Elizabeth De Virgilio

THE STORY:

Hi, my name is Elizabeth De Virgilio, and my husband, Damian, has had nystagmus and an associated condition called ocular albinism since infancy. Although nystagmus takes several forms and is associated with a wide variety of different conditions, it generally refers to involuntary eye movement which usually results in some level of vision loss.

When I first met my husband, I knew nothing about nystagmus and its related conditions. In fact, at first, his abilities and resourcefulness downplayed the impact on his day to day life. However, before long, I grew to see the frustration and adversity faced by someone with this visual impairment which presently cannot be fully corrected. As our relationship evolved towards building a family, I still had many questions and concerns. How can I best prepare for raising children who may have the condition? What resources are available? Then Damian and I became involved with the American Nystagmus Network.

The American Nystagmus Network is a nonprofit organization founded in 1999 to serve the needs and interests of those affected by nystagmus. Though the degree of eye movement and vision loss varies from person to person and may depend on associated conditions, ANN seeks to provide help in coping with nystagmus through the exchange of information and ideas, guidance, and counseling. ANN’s initiatives include a regular biennial conference, a scholarship fund, and an assistive technology grant fund. In addition to being a not for profit organization, ANN’s Board of Directors is 100% volunteer.

The 2013 Newport Jersey City Half-Marathon is my very first attempt at running a long distance race, and I am honored to do so as a means of raising awareness for nystagmus and the American Nystagmus Network. We are extremely grateful for each and every contribution to help us meet our goal. Thank you for taking the time to read about our fundraiser.

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To This Fundraiser

$4,605

MONEY RAISED
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  • The Cranmer Family

    $100

  • Matt Katz and Family

    $20

  • Edward's Steakhouse

    $100

  • Laura Weigand

     

  • Damian DE Virgilio

    $150

  • Jeff Snow

    $25

  • Jaffer Zaidi

     

  • Jacqueline Berg

    $100

  • Alli Martucci

    $50

  • Chris Jansen

     

  • Allison Martucci

    $50

  • Shane and Jacqueline Peros

    $100

  • Chris LaSala

    $100

  • Google Matching Donation

    $150

  • Nikki Yoshikawa

    $50

  • The Hojnowski Clan

    $100

  • Aunt Nets

    $100

  • Kelli McMaste

    $100

  • Adam liss

    $50

  • Yoni Wilbur

    $50

  • Ben and Julie Waltzer

    $50

  • Kelly Cassin

    $50

  • The Beaudet Family

    $25

  • Jeffrey Birnbaum

    $50

  • Heidi Lackovic

    $50

  • The Eisenberg Family

    $50

  • Gustavo Fuentes Rivera

    $50

  • Photosbycate.com

    $15

  • Danielle Rios

    $50

  • Anonymous

    $75

  • Deborah Sutherland

    $50

  • Montelbano's

    $75

  • Stefano Filiberti

    $50

  • Paulmichael Blasucci

    $50

  • Josh Cohen

    $50

  • Nathan Don

    $50

  • Paul Weigand

    $25

  • Julie Sterling

    $50

  • Jordan & Carol George

    $100

  • Jen and Mike Csatlos

    $50

  • Cheryl Langel

     

  • Talbot

    $50

  • Anonymous

    $50

  • Ann Rosenthal

    $50

  • Bodhi Mukherjee

    $50

  • Ron Santangelo

    $50

  • Nick El-Hage

     

  • Laura Hunt

    $100

  • Lynn Kucher

    $50

  • Mr.l & Mrs. Joseph Coschera

     

  • Paulette Polakis

     

  • Eric Bouhall

    $75

  • Vivian Siu Murphy

    $50

  • Notorious B.I.G.

    $50

  • Wade Vache'

    $50

  • FRANK AMORE

    $50

  • Brian Henry - Boyne Realty

    $100

  • Kunal Parekh

    $50

  • Ryann Bennett

    $50

  • Christine Smith

    $50

  • Mike Passarelli

    $50

  • Darin & Jenny

    $100

  • Lauren Rosa

     

  • Tom & Betsy Keogan

    $100

  • Rachel Milano-Smith

    $50

  • Barry & Linda Stern

    $50

  • Aideen Shea

     

  • Michele Hecht

    $25

  • Yelena Reich

    $25

  • Bonnie and Conny Verrine

    $100

  • Enzo & Marco

    $20

  • Courtney and Jimmy Dean

    $50

  • Colleen Donohue

    $100

  • Juan E. Aponte

    $100

  • Eric & Annaliese Rush

    $50

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46% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $4,605 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Elizabeth De Virgilio

Amount Raised

$4,405

 

44% Raised of $10,000 Goal

Donor Comments

Eric & Annaliese Rush

Eric & Annaliese Rush

DONATION: $50

3 years ago

Juan E. Aponte

Juan E. Aponte

DONATION: $100

4 years ago

Colleen Donohue

Colleen Donohue

DONATION: $100

4 years ago

Courtney and Jimmy Dean

Courtney and Jimmy Dean

DONATION: $50

Rory Smith we love you!! 4 years ago

Enzo & Marco

Enzo & Marco

DONATION: $20

For our favorite zio & Godfather: You are a true example of resilience and hard work. We love you. And for our favorite zia: Your just awesome for doing this! 4 years ago

Bonnie and Conny Verrine

Bonnie and Conny Verrine

DONATION: $100

4 years ago

Yelena Reich

Yelena Reich

DONATION: $25

4 years ago

Michele Hecht

Michele Hecht

DONATION: $25

Happy, smooth running! 4 years ago

Aideen Shea

Aideen Shea

Happy Running!!!!! 4 years ago

Barry & Linda Stern

Barry & Linda Stern

DONATION: $50

In Tribute to Rory Smith 4 years ago