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L.J Maravilha fundraiser

Organized by: Paul Gomes

Paul's Photo

THE STORY:

This fundraiser is sponsored by LYSA (Ludlow Youth Soccer) and intended to gather donations from LYSA families and friends but ANYONE may donate.

At 10 years old, L.J. Maravilha suffers from ROHHAD (Rapid Onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation)... It's a very rare and life-threatening disorder, whereby only about 80 children in the world have been diagnosed with the disorder... Symptoms include difficulty breathing, uncontrollable eating, gastrointestinal, heart and body temperature issues, tumors, neurobehavioral disorders, pneumonia, and cardiac arrest.

L.J. is a student at Veterans Park School in Ludlow, MA but is not able to share the joys of most other elementary students... LJ is 5’3”, weighs over 330 pounds and spends his time in a wheelchair as a result of the symptoms of his disease. LJ's family continues to struggle with medical care... Please consider making a donation to help the family with treating L.J.

For more information on ROHHAD, see the following sites:
http://en.wikipedia.org/wiki/ROHHAD
http://rarediseases.info.nih.gov/gard/10407/rohhad/resources/1

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MONEY RAISED
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Organized by

Paul Gomes

This is a direct to organizer fundraiser.

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