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Loeys-Dietz Syndrome Foundation

Loeys-Dietz Syndrome Foundation
CROWDRISE : Oct 14, 2010
Tax ID: 65-1306978
BASED: Fostoria, OH, United States

CHARITY WEBSITE: www.loeysdietz.org

Loeys-Dietz Syndrome Foundat...

Our Mission

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The Loeys-Dietz Syndrome Foundation (LDSF) is a 501(c)3 non-profit organization based in Baltimore, Maryland. The Foundation is dedicated to:

  • Encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis, and treatment of Loeys-Dietz syndrome.
  • Fostering research about Loeys-Dietz syndrome.
  • Providing a support network for individuals, parents, and families affected by Loeys-Dietz syndrome.

Loeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005. Since then, other groups around the world have described additional genetic causes of Loeys-Dietz syndrome.
Individuals with LDS exhibit a variety of medical features in the cardiovascular, musculoskeletal, skin and gastrointestinal systems. Information about the natural history and management of individuals with LDS continues to evolve.
LDS manifests itself in a number of ways; therefore, no two persons with LDS will have identical medical characteristics. It is recommended that you consult your physician or a local geneticist if you have questions about individual health concerns.

Tax ID: 65-1306978 • www.loeysdietz.org

Fundraisers

Gemma's Bath Half Marathon for the Loeys-Dietz Syndrome Foundation

Gemma's Bath Half Marat…

Amount Raised:

$1,070

 

107% Raised of $1,000 Goal

Mary Harris - Choose Happiness Tribute for Loeys-Dietz Syndrome Foundation

Mary Harris - Choose Happine…

Amount Raised:

$1,688

 

56% Raised of $3,000 Goal

Move Your Feet For Loeys-Dietz

Move Your Feet For Loeys-Dietz

Amount Raised:

$27,791

 

93% Raised of $30,000 Goal

Devyn's Move Your Feet For Loeys Dietz

Devyn's Move Your Feet …

Amount Raised:

$3,005

 

100% Raised of $3,000 Goal